MDA For Strength Independence & Life

Help Through Services and Support

MDA is committed to helping kids and adults with muscle-debilitating diseases live longer and grow stronger. We offer numerous services and resources in hometowns across America that provide care, support and guidance through every step of your journey.

Young Adult Resources

Below is a list of our favorite resources that we think are especially helpful for young adults with a neuromuscular condition. While this may not cover everything you need, we hope these resources are helpful as you navigate the exciting world of education, employment, independent living, and yes, even “adulting.”

Looking for one-on-one support? Email us at YoungAdults@mdausa.org to schedule a one-on-one coaching session with our National Director of Young Adult and Community Engagement, Alex McArthur.

Education

A quality education is key to future success. We want to support your educational goals, whether they include a 2-year or 4-year degree, a Doctorate, or a lifetime of learning! The resources below include links to information about for paying for, preparing, and choosing higher education. Don’t forget to check out non-disability related college resources such as FAFSA, Best Colleges, My College Options, and National Association for College Admissions Counseling.

Scholarships and Financial Aid Resources and Publications

College Prep Resources and Publications

College Resources

Employment

People with neuromuscular conditions are making incredible contributions in the workforce. After defining your goals, honing your resume and interview skills, and exploring general job-search resources, check out the links below for resources specific to job-seekers with disabilities. And remember, many jobs are found through networks, so don’t neglect conducting informational interviews!

Job Search

Accommodations

General Resources

Internships

Career Resources (not specific to physical ability)

Independent Living: Attendant Care Resources

There are many components to living independently as a young adult, including accessible housing, financial education, and more. Your local Center for Independent Living can connect you to many services to support you. In addition, be sure to search for "Consumer Directed Services" in your state. For individuals with neuromuscular conditions, finding, managing, and paying for personal care can be one of the greatest challenges to living on your own. The sections below can help you coordinate your care.

Managing PCAs

Finding PCAs

Attendant Services 

Was a resource particularly helpful? Are there any others you'd recommend? Send us an email at youngadults@mdausa.org and let us know!

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