Science That Changes Lives

MDA Monthly Report - Past Issues and Articles - Archive

MDA’s Monthly Report eIssue provides a summary of recent and important updates and events for clinicians and researchers working in neuromuscular disease. Within the Issue you will find: thought leader editorials, clinical trial updates/data releases, upcoming events and meetings, grant application deadlines, overviews of recent publications of interest, MDA blog recaps, and program spotlights.

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Please click below to see the previous MDA Monthly Report Issues.

December 2024

• A Camp for All

November 2024

• Training the Next Generation of Neuromuscular Disease Experts

October 2024

• How Can a Genetic Counselor Help Your Team?
• New Therapeutic Strategies in Myasthenia Gravis

September 2024

• Three Strategies for Avoiding Prior Authorization Delays
• Updates in Myotonic Dystrophy

August 2024

• How Physicians and Care Team Members Can Help with College Prep
• Spinal Muscular Atrophy Treatment and Research

July 2024

• How Social Workers Can Help with College Prep
• Updates on Collagen VI-related Dystrophies

June 2024

• New X-linked Myotubular Myopathy: Treatment and Research Updates
• Managing Transitions to Adult Care

May 2024

• Alternative Medicine Techniques Can Help Patients Manage Symptoms
• Spinal-Bulbar Muscular Atrophy Treatment and Research Updates
• The Importance of Disease Registries

April 2024

• 2024 MDA Clinical & Scientific Conference Highlights

March 2024

• Increasing Access to Genetic Counselors
• MOVR Makes an Impact on Multiple Levels
• Navigating Challenges in the Healthcare System

February 2024

• Resolving Bowel Issues in Patients with DMD
• Oculopharyngeal Muscular Dystrophy Research and Treatment Updates

January 2024

• The Intersection of Physical Therapy and Research
• Progress Continues in Pompe Disease Treatment

December 2023

• Care for Children with Myasthenia Gravis

November 2023

• How to Approach Feeding Tube Conversations with Families
• Mental Health in Children With NMD

October 2023

• Limb-Girdle Muscular Dystrophy Research Update

August 2023

• The Endocrinology Factor in Muscular Dystrophy
• Updates on Newborn Screening for Neuromuscular Diseases

July 2023

• Why You Should Talk to Patients About Sex and Family Planning

June 2023

• Clinical Trial Explores New CMT1A Drug Therapy
• Investigating Possible FSHD Treatments

May 2023

• ALS Research Has a Bright Future
• A Look at How Rare Disease Care Is Progressing

April 2023

• MDA holds follow-up summit to address challenges in gene therapy
• MDA Conference Makes an Impact
• Best Practices for Facilitating Clinical Trial Participation

March 2023

• The Role of Genetic Counseling in Informing Families About Genetic Testing Results
• Freidreich's Ataxia Treatment Update

February 2023

• What Is the Future of Telehealth Policy?
• A Look at Mitochondrial Disease

January 2023

• Managing Respiratory Function in Neuromuscular Disorders
• Billing Code Changes Are a Step Forward for Care Centers

December 2022

• 2022 Year in Review

November 2022

• Best Practices for Managing Cardiac Involvement with NMD
• Navigating Complicated Ethics in Neuromuscular Disease Care

September 2022

• Taking on the Challenges of Gene Therapy
• MedShr Grows Knowledge in the Medical Community
• Co-author of Study on Corticosteroid Side Effects With DMD Finds More Reasons to Use Them

August 2022

• The Future of Pediatric Neuromuscular Disease Treatment
• Approaching Difficult Conversations With Patients

July 2022

• Newborn Screening Improves Health Outcomes
• Advocating for the MDA Community
• Factors for Choosing Adaptive Equipment

June 2022

• Avoiding Physician Burnout

May 2022

• Helping Patients Overcome Barriers to Treatment
• Palliative care can be a vital support in ALS and other neuromuscular diseases

April 2022

• 2022 MDA Clinical & Scientific Conference Highlights
• Improving Outreach and Care to Non-English-Speaking Communities

March 2022

• Facilitating Transitions to Independence
• In the Lab with Alba Timon-Gomez, PhD

February 2022

• Applying Nutritional Guidelines To Neuromuscular Disease
• MDA Holds Summit To Address Challenges In Gene Therapy

January 2022

• Don't Overlook This Resource At Your Fingertips: Quest
• Facing Variants Of Uncertain Significance When Conducting Genetic Testing/whole Genome Sequencing

December 2021

• Best Practices for Working with Local Caregivers

November 2021

• Your Role In Critical Decisions

October 2021

• The Importance Of Mental Health
• Sexual Health For Patients With Neuromuscular Disease

August 2021

• Clinical Trial Design

July 2021

• Healthcare And The Americans With Disabilities Act
• MDA Access Workshops Help Families Face Barriers With Knowledge And Resources

June 2021

• Best Practices to Improve Access to Care
• Program Spotlight

May 2021

• Healthcare providers, make time to take care of your of your own mental health
• Q&A: telemedicine for management of patients with ALS

April 2021

• April 2021 MDA Monthly Report Monthly Feature Full Article
• April 2021 MDA Monthly Report Program Spotlight Full Article
• Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe)

March 2021

• March 2021 MDA Monthly Report Monthly Feature Full Article

February 2021

• February 2021 MDA Monthly Report Monthly Feature Full Article

January 2021

• January 2021 MDA Monthly Report Monthly Feature Full Article

December 2020

• December 2020 MDA Monthly Report Monthly Feature Full Article

November 2020

• November 2020 MDA Monthly Report Monthly Feature Full Article

October 2020

• October 2020 MDA Monthly Report Monthly Feature Full Article

September 2020

• September 2020 MDA Monthly Report Monthly Feature Full Article

August 2020

• August 2020 MDA Monthly Report Monthly Feature Full Article
• August 2020 MDA Monthly Report In the News Full Article

July 2020

• July 2020 MDA Monthly Report Monthly Feature Full Article
• July 2020 MDA Monthly Report In the News Full Article

June 2020

• June 2020 MDA Monthly Report Monthly Feature Full Article
• June 2020 MDA Monthly Report In the News Full Article

May 2020

• MDA Monthly Report Monthly Feature Full Article May

April 2020

• MDA Monthly Report Monthly Feature Full Article April

February 2020

• MDA Monthly Report Monthly Feature Full Article February

January 2020

• MDA Monthly Report Monthly Feature Full Article January 2020
• MDA Monthly Report In the News Full Article January

November 2019

• MDA Monthly Report Monthly Feature November Full Article

October 2019

• October Monthly Feature Full Article

September 2019

• September Monthly Feature Full Article

August 2019

• August Monthly Feature Full Article

July 2019

• July Monthly Feature Full Article

May 2019

• May Monthly Report Monthly Feature Full Article
• May Monthly Report In the News Full Article

April 2019

• MDA April Monthly Report Conference Full Article
• MDA April Monthly Report DMD Webinar Full Article

March 2019

• March Monthly Report Conference 2019 Full Article

February 2019

• MDA OneVoice Survey Report
• MDA MOVR Article