Innovations in Care
We provide programs and services that transform the lives of people affected by neuromuscular disease.
Daily Living: Navigating Special Education
March 26th, 2026
3:00 - 4:30pm EST
Live, Virtual Webinar
Join MDA for an informative webinar focused on navigating special education. Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support.
What We’ll Cover:
- How educational advocacy efforts advance MDA’s mission and the historical context of MDA’s education policy work
- Current policy landscape and how you can help MDA drive change at the federal level
- Different avenues to access special education services
- Common school-based challenges faced by students with neuromuscular disease
- How families can participate confidently in school meetings
- Resources for patients, families, and caregivers
- Live Q&A with the presenters
Meet Our Presenters:
Shannon Wood, Director of Disability Policy at MDA
Shannon Wood joined MDA in 2024 as Director of Disability Policy, where she works to ensure that members of the neuromuscular community can learn, work, travel and socialize without discrimination by advancing policies that maximize our community’s access to key programs and services. Prior to joining MDA, Shannon served as Director of Advocacy and Policy at the National Multiple Sclerosis Society, where she advocated on health and disability policy issues impacting people affected by MS. She also brings experience from previous state and federal advocacy roles with the American Psychological Association.
Lucia Frohling, State and Local Policy Coordinator for the Council of Parent Attorneys and Advocates (COPAA)
Lucia Frohling is a COPAA-trained non-attorney special education advocate, former public school teacher, and Director of Parent Services with Oklahoma Parents for Student Achievement. Lucia also serves as the State and Local Policy Coordinator for the Council of Parent Attorneys and Advocates (COPAA). She supports families nationwide in navigating evaluations, IEPs, 504 plans, and school disputes so students with disabilities can access appropriate supports and services. She is Co-Chair of the Oklahoma Transition Council and a member of the Oklahoma Rehabilitation Council, where she works to strengthen systems supporting students with disabilities as they move from school to adulthood. Her work focuses on equipping families with practical knowledge, clear strategies, and confidence in school decision-making.
Not available to join live on March 26th? Register to receive an email when the webinar is available to view on-demand.
If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.
MDA
Council of Parent Attorneys and Advocates (COPAA)
