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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

Updates in Research and Care: Understanding DMD Carrier Status- Health, Screening, and Support

July 24th, 2026
3:00 - 4:00 PM EST
Live, Virtual Webinar

Join MDA for an informative webinar focused on understanding Duchenne muscular dystrophy (DMD) carrier status, including symptom variability, diagnosis, and patient-centered care. Whether you're a patient, caregiver, or advocate, this webinar will offer valuable insights, resources, and support to help you navigate your healthcare journey with confidence.

What We’ll Cover:

  • Clinical presentation and variability of symptoms in individuals with DMD carrier status, including manifesting carriers
  • Best practices for evaluation and diagnosis, including the role of genetic testing
  • Patient-centered strategies for navigating care, understanding evolving terminology, and engaging in informed healthcare decisions
  • Live Q&A with the presenter

Register

Meet Our Presenter:
Elizabeth McNally, MD, PhD
Dr. McNally is Director of the Center for Genetic Medicine and Professor of Medicine (Cardiology) and Biochemistry & Molecular Genetics at Northwestern University Feinberg School of Medicine. She is an internationally recognized leader in cardiovascular genetics, with extensive expertise in neuromuscular and genetic disorders, including Duchenne muscular dystrophy.

Not available to join live on July 24? Register to receive an email when the webinar is available to view on-demand.

If you have questions about this webinar or other MDA programs, please contact the MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.

Faculty: 
Elizabeth McNally, MD, PhD
Director of the Center for Genetic Medicine and Professor of Medicine (Cardiology) and Biochemistry & Molecular Genetics

Northwestern University Feinberg School of Medicine


Thank you to our supporter:

Edgewise Therapeutics