Help Through Services and Support
MDA is committed to helping kids and adults with muscle-debilitating diseases live longer and grow stronger. We offer numerous services and resources in hometowns across America that provide care, support and guidance through every step of your journey.
Guidebooks and Pamphlets
A Teacher's Guide to Neuromuscular Disease Designed for your child's teacher, this booklet provides information and support to teachers of students with neuromuscular disease and is intended to help teachers better understand the challenges faced by children and adolescents affected by neuromuscular conditions. It includes general strategies to enhance your student’s school experience both academically and socially, and it addresses school issues that may arise throughout K-12 education. Also included here are some additional planning tools.
- Download Booklet PDF
- MDA’s Educational Recommendations: Plan Ahead
- Recommendations for School Accommodations: Physical and Occupational Therapy
- Diagnosis: Charcot-Marie-Tooth disease (CMT)
- Diagnosis: Duchenne Muscular Dystrophy (DMD)
- Diagnosis: Limb-Girdle Muscular Dystrophy (LGMD)
- Diagnosis: Myotonic Dystrophy (DM)
- Diagnosis: Spinal Muscular Atrophy (SMA)
Everyday Life with ALS: A Practical Guide In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.
Learning to Live with Neuromuscular Disease: A Message for Parents This booklet is for parents who've recently learned their child has a progressive muscle disease. Topics include: Facing your feelings, the other children in the family, single parenting, reaching out and teaching independence.
MDA ALS Caregiver's Guide This essential manual addresses the whole spectrum of caregiving for people with ALS, from respiration and nutrition to financial and legal concerns. It also contains an extensive section on finding caregiving help.
Road Map to Independence for Young Adults This book assists teens, young adults and their families as they prepare for and transition into adulthood. It is designed to foster discussion within the MDA clinic setting and the parents/guardians and teen(s) with a neuromuscular disease.
- Your MDA Care Center
- Young Adult Programs
- Find Support
- Neuromuscular Disease Registry
- Quest Magazine
- The Affordable Care Act