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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

2020 MDA Engage Pompe Disease Symposium

July 12, 2020MDA Engage Logo
Time: TBD
Virtual, online event

 

 

Click here to register

There is no cost to members of the MDA community or clinicians to attend the event, however, registration is required.

Event Chair: Dr. Heather A. Lau, Director of the Lysosomal Storage Disease Program, NYU Langone Health

Agenda

  • Research and Clinical Trials
    • Dr. Heather A. Lau, Director of the Lysosomal Storage Disease Program, NYU Langone Health
  • Best Practices in Clinical Care
    • Stephanie Austin, MS, MA, CGC, Duke University Medical Center
  • Raise your voice through grassroots advocacy
    • Brittany Johnson Hernandez and Mark Fisher, MDA
  • Nutritional Considerations in Pompe
    • Surekha Pendyal, Msc, MEd, RD, FAND, Duke University Medical Center
  • PT and Exercise
    • Laura Case, PT, DPT, MS, PCS, C/NDT, Duke University Medical Center
  • Drug Development Roundtable
    • Moderator: Dr. Heather A. Lau
  • MDA Spotlight

    On Monday, July 13, the MDA will be hosting a Pompe disease Patient Focused Drug Development (PFDD) Meeting virtually online. We encourage Engage attendees to also attend the PFDD meeting. For information on the PFDD meeting, and to register, click here.

    Thank you to our supporters:

    • Sanofi Genzyme
    • Amicus

    For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)