Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Duchenne Muscular Dystrophy (DMD) Symposium

August 8, 2020
Time: 11:00am - 4:30pm ET / 10:00am - 3:30pm CT
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact MDAPartners@mdausa.org.

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Agenda

Welcome & MDA Mission Spotlight (11:00am ET)
- Nicole Petrouski, MDA
Keynote Presentation: Integrated Care and DMD (11:15am ET)
- Dr. Brenda Wong, Pediatric Neurologist, UMass Memorial Medical Center
Clinical Trials and Research (12:10pm ET)
- Mattia Quattrocelli, PhD, Research Assistant Professor of Pharmacology, Northwestern University
Drug Development Roundtable (12:45pm ET)
Genetic Testing (1:40pm ET)
- Kimberly Zayhowski, MS, CGC, UMass Memorial Medical Center
Best Practices in Clinical Care (2:15pm ET)
- Pulmonary in DMD, Dr. Johnathan Finder, Professor, Pediatric Pulmonology, University of Tennessee Health Science Center
- Nutrition in DMD, Umme Vahanvaty, MS, RD, CSP, Children’s Hospital Los Angeles
Transitioning Care into Adulthood (3:10pm ET)
- Dr. Leigh Ramos-Platt, Director, Muscular Dystrophy Association Neuromuscular Clinic, Clinical Associate Professor of Pediatrics (Clinician Educator), Keck School of Medicine of USC
DME and Assistive Technology (3:45pm ET)
- Terri Carry, PT, Children’s Hospital Colorado
- Tim Estilow, OTR/L, Children’s Hospital of Philadelphia (CHOP)