BREAKING NEWS: New drug approved by the FDA for Duchenne muscular dystrophy. Learn more about this new treatment option.

Innovations in Care

We provide access to support and programs that empower the lives of people living with neuromuscular diseases.

Guidebooks and Pamphlets

A Teacher's Guide to Neuromuscular Disease Designed for your child's teacher, this booklet provides information and support to teachers of students with neuromuscular disease and is intended to help teachers better understand the challenges faced by children and adolescents affected by neuromuscular conditions. It includes general strategies to enhance your student’s school experience both academically and socially, and it addresses school issues that may arise throughout K-12 education. Also included here are some additional planning tools.
Everyday Life with ALS: A Practical Guide In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.
Road Map to Independence for Young Adults This book assists teens, young adults and their families as they prepare for and transition into adulthood. It is designed to foster discussion within the MDA clinic setting and the parents/guardians and teen(s) with a neuromuscular disease.