About Us

Recent Statements

November 3, 2026
Statement from the Muscular Dystrophy Association on Servier’s Announcement of Topline Results in Becker Muscular Dystrophy Study

October 29, 2026
Statement from the Muscular Dystrophy Association on Court Decision Affecting Medicaid Community Engagement Requirements

September 28, 2026
ACT for ALS Reauthorization Advances to the President After Today’s Senate Action

September 18, 2026
Statement from the Muscular Dystrophy Association on Stanford Medicine Research Advancing Understanding of the Brain and Neuromuscular Disease

August 5, 2026
Statement from the Muscular Dystrophy Association on Unanimous Senate Passage of the ACT for ALS Reauthorization Act

July 29, 2026
Statement from the Muscular Dystrophy Association on the FDA Cellular, Tissue, and Gene Therapies Advisory Committee Vote on Deramiocel

July 22, 2026
Statement from the Muscular Dystrophy Association on the House Passage of the ACT for ALS Reauthorization Act

June 23, 2026
DOJ Memo Threatens the Right of People with Disabilities to Live in Their Communities

June 18, 2026
MDA Celebrates Reintroduction of the Air Carrier Access Amendments Act

April 8, 2026
Leading ALS Organizations Celebrate Introduction of ACT for ALS Reauthorization Act: Call for Swift Congressional Passage

April 3, 2026
MDA Statement on the Administration’s Proposed Budget for Fiscal Year 2027

July 3, 2025
Congress Finalizes Historic Cuts to Care; MDA Pledges to Defend Community

July 1, 2025
Senate Passes Deeper Cuts to Care; MDA Urges House to Reject Bill

May 22, 2025
House Passes Cuts to Care; MDA Urges Senate to Reject House Bill that Reduces Coverage

May 14, 2025
Proposed Medicaid and Health Coverage Cuts Raise Substantial Concern for the Neuromuscular Community

Apr 3, 2025
Muscular Dystrophy Association's Statement on HHS Restructuring

Mar 18, 2025
Statement from the Muscular Dystrophy Association on Sarepta Therapeutics’ Safety Update on ELEVIDYS

Mar 13, 2025
MDA Condemns Dismantling of the U.S. Department of Education, Voices Risk of Harm to Students with Disabilities

Feb 10, 2025
MDA Condemns NIH Funding Cuts on Indirect Costs, Calls for Immediate Reversal