FDA Approves First Muscle-Targeted Therapy for SMA

If you missed an issue of our Quest Newsletter, catch up and access past issues below. Each newsletter features exclusive online articles, provides information about new and upcoming educational resources and events, and ongoing clinical trials that are enrolling.

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Quest September 2026
Quest September 2026

Read the Newest Issue of Quest Magazine - Access the Vote 2026 - Recruiting Clinical Trials - MDA Ambassador Blog: Building Confidence in the Classroom - Donnie Demers: The Man Behind the Music - A Safer Gene Therapy? - Your Guide to the Rehab Act - Your Guide to the Fair Housing Act - MDA Ambassador Blog: More than Getting from Point A to B - MDA Ambassador Blog: Technology as a Tool for Independence - MDA Engage: Chicago - MDA Research & Care: Mitochondrial Diseases - Simply Stated: Muscular Dystrophy-dystroglycanopathy Type A (MDDGA)

Quest August 2026
Quest August 2026

Enter the Quest Photo Contest! - Access, Impact, & Connection at MDA Conference - Recruiting Clinical Trials - Quest Podcast: Your Difference is Your Superpower - Education and Advocacy During Medical Emergencies - Community Perspectives on Using Respiratory Devices - Your Guide to the Affordable Care Act - Ambassador Guest Blog: Life Beyond the Ramp - Ambassador Guest Blog: The Power of Friendship - Books to Add to Your Summer Reading List - Key ALS Bill Passes US Senate - MDA Engage: Chicago - MDA Daily Living: Getting the Most Out of Your Healthcare

Quest July 2026
Quest July 2026

Your Guide to the ADA - MDA Ambassador Blog: Embracing My Disability Identity - Recruiting Clinical Trials - Tips for Accessible Dental Care - MDA's Durable Medical Equipment (DME) Grant Program - MDA Virtual Learning: Ask the Experts Q&A on Equipment - Life with Lily: Accessible Fashion & Beauty - MDA Ambassador Blog: Lessons in Life and Fatherhood - MDA Ambassador Blog: My Myasthenia Gravis Voyage - Five Things You’ll Find at MDA Engage Events - MDA Joins Forces to Protect NIH Funding - Simply Stated: Updates in Myofibrillar Myopathies (MFMs)

Quest June 2026
Quest June 2026

Read the Newest Issue of Quest Magazine - Tell Us What You Think About Quest - Recruiting Clinical Trials - New Quest Media Summer Product Guide - MG Treatment Brings Hope for Rare Disease - Quest Podcast: Family Caregiving, Policy, and the Power of Showing Up - Critical ALS Legislation You Need to Know - MDA Ambassador Blog: Resilience Through Depression - MDA Ambassador Blog: Finding Community - Accessible Birding - MDA Engage Event in Hershey, PA - Simply Stated: Morimoto–Ryu–Malicdan neuromuscular syndrome

Quest May 2026
Quest May 2026

MDA Ambassador Blog: ALS is Not the End of My Story - Q&A with Comedian Fiona Cauley - Recruiting Clinical Trials - Quest Podcast: From Roadmap to Emmy - Pompe Disease and Extraordinary Measures in Research - The Drug Development Cycle - Expert Advice for Medical Emergencies - MDA’s Campaign to Support Family Caregivers - MDA Ambassador Blog: How I Use My Voice by Volunteering - The Powerful Impact of MDA Summer Camp - MDA Virtual Learning: Spotlight on ALS - Simply Stated: CIAO1-Related Neuromuscular Disorder

Quest April 2026
Quest April 2026

Quest Podcast: Pizzaz, Purpose, and Periodic Paralysis - Higher Dose Spinraza Regimen Brings More Hope - Research Network Grant News - Wildland Fire Fighter Doesn’t Allow Diagnosis to Define Him - How to Make Vocational Training Affordable - Life with Lily: Expert Specialists Are Crucial to Care - MDA Ambassador Guest Blog: Life with a Feeding Tube - Urge Lawmakers to Support Family Caregivers - MDA Virtual Learning: Spotlight on OPMD - Simply Stated: CIDP - Calling All Community Authors - Recruiting Clinical Trials

Quest March 2026
Quest March 2026

Read the Newest Issue of Quest Magazine - The Spring Quest Product Guide is Here! -Quest Podcast: Fashion for Every Body - Young Researcher Aims to Better NMD Care - Honoring Innovation - Ambassador Guest Blog: Pursuing My Dreams - Ambassador Guest Blog: Say Yes! - Momentum and Progress for Neuromuscular Disease - Understanding Threats to Section 504 - MDA Research & Care Webinar: Sleep Challenges & Neuromuscular Disease - Simply Stated: Updates in X-Linked Myotubular Myopathy - Recruiting Clinical Trials

Quest February 2026
Quest February 2026

Quest Podcast: Life Hacks with Jax - What’s Ahead for Your 2026 National Ambassador - Making the Impossible Possible: One Man’s Journey - MDA’s Advocacy Team’s 2026 Priorities - Collective Advocacy Propels Hope & Possibility - How to Choose a College with a Disability - The Keys to Adaptive Driving - MDA Ambassador Guest Blog: Prioritizing Health as I Age - MDA’s Next Steps Seminar: Newly Diagnosed Pediatrics - Simply Stated: Understanding Myotonia Congenita - Recruiting Clinical Trials

Quest January 2026
 Quest January 2026

Reflections on 2025 and the Year Ahead - MDA Ambassador Blog: Chair Workouts for the New Year - Insights by Ira: Mission Accomplished - Everything You Need to Know About Clinical Trials - Vibrance – Pediatric gMG Trial - Progress Through Partnership: MDA Research Grants - College is Possible with the Right Plan - Shifting Perspectives: Person-First and Identity-First Language - Updates on Air Travel Advocacy - MDA Virtual Learning: Spotlight on Friedreich’s Ataxia (FA) - Simply Stated: Understanding Inflammatory Myopathies - Recruiting Clinical Trials

Quest December 2025

Read the Newest Issue of Quest Magazine - 'Tis the Season for Holiday Hacks - Quest Podcast: Wrapping Up 2025 with Ira & Lily - Financial Programs Quick Guide - Ambassador Guest Blog: A Parent’s Decision on Genetic Testing - Lessons from Lily: Advice for Parents - Ambassador Guest Blog: My Journey to Gratitude - MDA On the Hill 2025 - What Advocates Should Know About the Caregivers Act - MDA Education: Learn Anytime, Anywhere - Simply Stated: Updates in Primary Mitochondrial Diseases - Recruiting Clinical Trials

Quest November 2025
Quest November 2025

How to Master Cooking with a Disability - Books to Add to Your Holiday Shopping List - What Is Expanded Access? - The 2026 MDA Clinical & Scientific Conference - Quest Podcast: Celebrating Employment Inclusion with Disability:IN - MDA Daily Living Webinar: Vocational Training and Employment Assistance - Wearable Exoskeletons Improve Movement - Ambassador Guest Blog: Entrepreneurship, Advocacy, & Innovation - Ambassador Guest Blog: Why I am Speaking Up at Hill Day - What to Know About Changes to SNAP - Simply Stated: Updates in Neuropathy Ataxia and Retinitis Pigmentosa Syndrome - Recruiting Clinical Trials

Quest October 2025
Quest November 2025

Quest Holiday Product Guide is Here! - Ambassador Guest Blog: Accessible Halloween Costumes - Adaptive Style Hits High Fashion - Insights by Ira: Decades of Impact - Putting the Power in Powerhockey - Disability is Not a Disappearing Act - Ambassador Guest Blog: My Journey with BMD - Quest Podcast: Genetic Coding for New Treatments - Simply Stated: Updates in FSHD - Don't Miss MDA’s Engage Symposiums - Tell Congress to Support Medical Research Funding - Recruiting Clinical Trials

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

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