About Us

We're here to transform the lives of people affected by neuromuscular disease.

Press Releases

  • MDA Funds Expansion of Facioscapulohumeral Muscular Dystrophy Clinical Research Network

    $1.2 million investment will support seven medical centers that specialize in FSHD research and clinical care

    CHICAGO, June 20, 2018 – The Muscular Dystrophy Association announces the award of an MDA clinical research network grant totaling $1.2 million over three years to develop and maintain a core facioscapulohumeral muscular dystrophy (FSHD) Clinical Trial Research Network (CTRN). The goal of the research network is to spur advances in FSHD research and expedite the development of new therapies for FSHD.

  • Sailormen Inc. Popeyes Raises More Than $1,000,000 for MDA

    The annual “Appetite for a Cure” program and golf tournament will help fund vital research and care for kids and adults affected by neuromuscular disease.

  • MDA and ALS ONE Form New Partnership to Accelerate ALS Biomarker Research

    MDA research grant awarded to ALS ONE will fund exploration of Positron Emission Tomography (PET) imaging of inflammation in people with ALS

  • MDA Awards $2.6 Million in New Research Grants

    Investment funds critical infrastructure, feeds a rapidly expanding therapy development pipeline and encourages researchers and other stakeholders to commit to the neuromuscular field

  • Target ALS Launches Biomarker Study with Academic, Industry, and Philanthropic Partners

    Unprecedented Effort Aims to Accelerate Testing of New ALS Therapies

    NEW YORK CITY, N.Y. ( April 19, 2018 ) — Target ALS today announced the launch of a new study that connects the CReATe Consortium (Clinical Research in ALS and Related Disorders for Therapeutic Development), the Muscular Dystrophy Association and 10 pharmaceutical companies to validate the most promising ALS biomarker candidates, and immediately make all results broadly available to the worldwide ALS research community.

  • MDA Names Michael J. Kennedy as Chief Financial Officer

    CHICAGO, March 30, 2018 — After a comprehensive nationwide search, the Muscular Dystrophy Association has announced the appointment of Michael Kennedy as Executive Vice President and Chief Financial Officer, effective March 19, 2018. Kennedy succeeds Julie Faber, who left MDA earlier this year.