About Us

Our mission is to empower people living with neuromuscular diseases to live longer, more independent lives.

Press Releases

May 5, 2025

Donald S. Wood, PhD to Retire as Muscular Dystrophy Association’s President and CEO After Decades of Impactful Leadership

Muscular Dystrophy Association’s EVP and Chief Research Officer Sharon Hesterlee, PhD, appointed interim President and Chief Executive Officer.
Apr 30, 2025

FDA Approves Johnson & Johnson’s IMAAVY™ (nipocalimab-aahu) a New Treatment for Myasthenia Gravis (MG), Offering Hope for Families

First and only FcRn blocker approved in anti-AChR and anti-MuSK antibody positive adults and pediatric gMG patients aged 12 and older.
Apr 29, 2025

Muscular Dystrophy Association Launches National ALS Awareness Campaign to Accelerate the Search for a Cure

Building on its 75-year legacy of progress, MDA is reinforcing its commitment to the ALS community by driving momentum for treatments and expanding access to multidisciplinary care.
Apr 28, 2025

IAFF Professional Fire Fighters of New Hampshire Announce 38th Annual Trans-New Hampshire Bike Ride June 20-22 to benefit Muscular Dystrophy Association

MDA Ambassador Fred Graves, who lives with limb-girdle muscular dystrophy, will be honored at the event.
Apr 22, 2025

Dan Doctoroff, Dr. Michael Benatar, Dorothy Deutsch & Christine Pendergast to be Honored at the 25th Annual MDA Wings Over Wall Street Gala to Drive Research for a Cure for ALS, June 25 in New York City
Apr 8, 2025

International Association of Fire Fighters & Affiliates Launch ‘Fill the Boot’ Fundraisers Nationwide in Support of the Muscular Dystrophy Association throughout the Organization’s 75th Anniversary

Studies show a heightened prevalence of ALS among fire fighters, who are diagnosed at twice the rate of the general population. The MDA & IAFF are focused on finding the cause.

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