More Than 300 Conditions. One Mission.
Discover how MDA advances research, care, and advocacy for the entire spectrum of neuromuscular diseases. Explore the specific neuromuscular diseases MDA supports.
The Future of Neuromuscular Medicine Begins Here
Join leading clinicians and researchers at MDA’s Clinical & Scientific Conference, March 8–11, 2026, in Orlando, FL. Learn more and register for the world’s most talked-about gathering of leading clinicians and researchers.
The Gold Standard in Care
Discover why MDA Care Centers are considered the benchmark in multidisciplinary neuromuscular care nationwide.
Advocacy That Drives Change
From improving access to care to shaping national health policy, MDA amplifies the voice of the neuromuscular community. See how our advocacy is making an impact and how you can join us.
Answers When You Need Them
Connect with MDA’s Resource Center for human-to-human, one-on-one guidance, trusted disease information, and program support.
Connection & Community
MDA Support Groups unite the neuromuscular disease community. Discover a local or virtual group today.
Strength in Every Story
Find out what it means to be #MDAstrong and join a movement powered by resilience and progress. Discover how strength takes shape across our community.
A Week That Changes Lives
Hear why campers, parents, and volunteers say MDA Summer Camp is life changing—and how you can get involved.
75 Years of Momentum
The Muscular Dystrophy Association is proud to celebrate 75 years of groundbreaking progress in research, care, and advocacy for people living with neuromuscular diseases.
Dear Friends,
Welcome to the Muscular Dystrophy Association (MDA). We are honored to be featured as the inaugural organization in Rare Disease Advisor’s Rare Advocacy Spotlight during our 75th anniversary year.
For 75 years, MDA has advanced research, expanded access to expert care, and strengthened the community that connects families, clinicians, scientists, and partners across the rare disease landscape.
On MDA.org you’ll find trusted resources, from clinical updates and patient support to our Care Center Network and the annual Clinical & Scientific Conference. We hope this is the first of many visits, and that you find the knowledge, connection, and inspiration you need here.
On behalf of everyone at MDA, thank you for visiting. We look forward to the future we will build together.
Sharon Hesterlee, PhD
President & CEO
Stories That Move Us
Watch our national PSAs featuring families, athletes, and advocates who embody the spirit of MDA Strong.
Celebrating 75 Years of Progress
Watch how the Muscular Dystrophy Association has shaped progress in neuromuscular science, care, public policy, and community.
Answering the Call: Ken Sutcliffe
Ken Sutcliffe, retired Dallas Fire Fighter IAFF Local 58, and military veteran. Thanks to MDA, Ken and many others like him are receiving the treatment and care that they need.
Nyheim Hines and Ethan LyBrand
Nyheim Hines, MDA National Spokesperson and Ethan LyBrand, MDA National Ambassador, team up to increase neuromuscular disease awareness.
