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How Are Registries Informing Neuromuscular Disease?
Activity Snapshot
Activity Type:
On-Demand Webinar
Release Date:
Thursday, August 7, 2025
Sponsor Information:
This program is supported in part by an independent medical education grant from Novartis.
Faculty
Matthew Burford, MD
Assistant Professor of Neurology; Director, Neuromuscular Medicine Fellowship
The Ohio State University Medical Center
Daragh Heitzman, MD, FAAN
Director, ALS/Motor Neuron Disorder Clinic
Texas Neurology
Michael Isfort, MD
Assistant Professor of Neurology; Clinical Director, CMT Association Center of Excellence
The Ohio State University Wexner Medical Center
Paul Mehta, MD
Principal Investigator
CDC National ALS Registry
Activity Overview:
This webinar will provide updates on enrolling observational studies, and how registries are informing disease understanding, including ALS, CMT, myositis, and more. Panelists will also provide perspectives on how to support patient enrollment and share resources.
