Medical Educational Resource
We're accelerating the delivery of treatments and cures.
How Are Registries Informing Neuromuscular Disease?
Activity Snapshot
This program is supported in part by an independent medical education grant from Novartis.
Faculty

The Ohio State University Medical Center

Texas Neurology

The Ohio State University Wexner Medical Center

CDC National ALS Registry
This webinar will provide updates on enrolling observational studies, and how registries are informing disease understanding, including ALS, CMT, myositis, and more. Panelists will also provide perspectives on how to support patient enrollment and share resources.
Recognize the benefits of patient participation in NMD-specific registries and observational studies.
Improve their knowledge about published findings and recommendations from NMD natural history studies.
Leverage resources to help patients enroll in registries and observational studies.
Step 1: Create an account with the accreditation company
- Go to https://www.akhcme.com
- Click “register” found on the top right corner of the home page
- Complete the form to create a new account.
Step 2: Access CE dashboard here: https://akhcme.com/content/disease-registries-how-are-they-informing-car...
Click "register/take course" to login and access the post-test questions
Disclosures
It is the policy of AKH Inc. to ensure independence, balance, objectivity, scientific rigor, and integrity in all of its continuing education activities. The author must disclose to the participants any significant relationships with ineligible companies whose products or devices may be mentioned in the activity or with the commercial supporter of this continuing education activity. Identified conflicts of interest are mitigated by AKH prior to accreditation of the activity. AKH planners and reviewers have no relevant financial relationships to disclose.
Disclosure of Unlabeled Use and Investigational Product
This educational activity may include discussion of uses of agents that are investigational and/or unapproved by the FDA. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.
Disclaimer
This course is designed solely to provide the healthcare professional with information to assist in his/her practice and professional development and is not to be considered a diagnostic tool to replace professional advice or treatment. The course serves as a general guide to the healthcare professional, and therefore, cannot be considered as giving legal, nursing, medical, or other professional advice in specific cases. AKH Inc. specifically disclaim responsibility for any adverse consequences resulting directly or indirectly from information in the course, for undetected error, or through participants misunderstanding of the content. If you would like to opt out from future communications from AKH please send an email to optout@akhcme.com with your information with "Opt Out" in the subject line.
