FDA Approves KYGEVVI®, the First and Only Treatment for Thymidine Kinase 2 deficiency (TK2d)

Calendar of Events

Date
MDA Let's Play Up Late

Wednesdays @ 8pm ET
Jan 1, 2025 to Dec 31, 2025
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MDA Let's Play Saturday Night Game Night

Saturdays @ 7pm ET
Jan 1, 2025 to Dec 31, 2025
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MDA Let's Play Movie Night

Fridays
Jan 1, 2025 to Dec 31, 2025
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2025 Muscle Walk Your Way

Virtual
Jan 1, 2025 to Dec 31, 2025
 Register
2025 Make Your Move

Virtual
Jan 1, 2025 to Dec 31, 2025
 Register
Pediatric Community Support Group Dec 17, 2025 @ 4pm CT Register
Adult Community Support Group (18+) Dec 17, 2025 @ 5pm CT Register
Updates in Research and Care: Advances in Gene Therapy- Understanding Options and Decision-Making Dec 17, 2025 @ 4:00pm ET Register
ALS Community Support Group Dec 18, 2025 @ 5pm CT Register
Daily Living: Practical Solutions for Accessing Equipment and Assistive Devices Dec 18, 2025 @ 1:00pm - 2:00pm EST Register
2026 Walt Disney World Marathon Weekend

Walt Disney World Resort, Florida
Jan 1, 2026 to Jan 11, 2026
 Register
2026 runDisney Springtime Surprise Weekend

Disney’s Hollywood Studios, Florida

 Apr 16, 2026 Register

MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.

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