About Us
Our mission is to empower people living with neuromuscular diseases to live longer, more independent lives.
We use cookies to improve your experience.
Our mission is to empower people living with neuromuscular diseases to live longer, more independent lives.
Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.
Mary E. Fiance
National Vice President, Strategic Communications
press@mdausa.org
Brittany Allens
Public Relations Manager, Strategic Communications
Communications@mdausa.org
MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email press@mdausa.org for assistance.
MDA has incredibly knowledgeable experts and leaders on topics in clinical and scientific research, multi-disciplinary medical care, and advocacy for access for people living with disabilities. Learn more about interview subjects who are leading experts on muscular dystrophy, ALS and related neuromuscular diseases, and discussion on inclusion and access for people living with disabilities. Contact press@mdausa.org for interviews.
Public service announcements sharing the mission of the Muscular Dystrophy Association.
:60, :30, :15 second PSAs available.
MDA Media Partners are instrumental in helping us amplify our mission as we continue to lead the way in research, care, and advocacy to empower the neuromuscular community we serve.
MDA has earned awards and recognition in all areas of our organization.
At the Muscular Dystrophy Association, we’ve built our social media communities to connect, engage, and learn from one another. We welcome your participation and encourage open discussion about your experiences. When visiting, commenting, or posting on MDA’s social media channels, please keep these guidelines in mind.
November 5, 2026
Statement from the Muscular Dystrophy Association on Reports of Tumors in People Treated with Zolgensma
November 3, 2026
Statement from the Muscular Dystrophy Association on Servier’s Announcement of Topline Results in Becker Muscular Dystrophy Study
October 29, 2026
Statement from the Muscular Dystrophy Association on Court Decision Affecting Medicaid Community Engagement Requirements
Muscular Dystrophy Association, Inc.
1021 W Adams Street
2nd Floor, Suite 1073
Chicago, Illinois 60607
800-572-1717 | ResourceCenter@mdausa.org
The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization.
©2026, Muscular Dystrophy Association Inc. All rights reserved.
Privacy Policy | Terms of Use | State Fundraising Notices | Agentic Giving
The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization.
2026, Muscular Dystrophy Association Inc. All rights reserved.
Privacy Policy | Terms of Use | State Fundraising Notices | Agentic Giving