June is Myasthenia Gravis Awareness Month

About Us

Our mission is to empower people living with neuromuscular diseases to live longer, more independent lives.

34 Patient Groups: Preservation of ACA protections is an important win -- but critical work remains

NEW YORK, NY, June 17, 2021 -- 34 patient organizations representing millions of people living with serious and chronic health conditions issued the following statement regarding the Supreme Court's ruling upholding the Affordable Care Act:

"Patients across the country are finally breathing a sigh of relief. For years, they've faced uncertainty about the future of the landmark law that's enabled millions of people with pre-existing conditions to obtain comprehensive, more affordable health coverage that would have otherwise been out of reach. Patients now know with certainty: the critical protections they rely upon are here to stay.

Today's ruling, however, does not mean our work is over. While recent enhancements to the Affordable Care Act (ACA) including temporary expanded premium subsidies and increased navigator funding represent tremendous strides forward for patients, we believe lawmakers and the Administration must commit to doing even more to ensure our country's health. That task is particularly vital now, as COVID-19 has infected more than 33 million Americans and disrupted the healthcare of countless others.

We remain committed to building upon the ACA's success and look forward to working with lawmakers and the Administration to make health coverage more affordable and equitably accessible; expand and protect Medicaid; and promote access to high-quality insurance now and for generations to come."

The AIDS Institute
National Multiple Sclerosis Society
Epilepsy Foundation
The Leukemia & Lymphoma Society
Susan G. Komen
American Kidney Fund
Arthritis Foundation
Muscular Dystrophy Association
Crohn's & Colitis Foundation
American Lung Association
WomenHeart: The National Coalition for Women with Heart Disease
ALS Association
Hemophilia Federation of America
National Psoriasis Foundation
Family Voices
National Eczema Association
National Hemophilia Foundation
National Coalition for Cancer Survivorship
National Patient Advocate Foundation
Cancer Support Community
Immune Deficiency Foundation
Asthma and Allergy Foundation of America
Cystic Fibrosis Foundation
American Cancer Society Cancer Action Network
National Organization for Rare Disorders
American Diabetes Association
National Alliance on Mental Illness
United Way Worldwide
National Kidney Foundation
National Health Council
American Heart Association
March of Dimes
American Liver Foundation

About the Muscular Dystrophy Association

For 70 years, the Muscular Dystrophy Association (MDA) has been committed to transforming the lives of people living with muscular dystrophy, ALS, and related neuromuscular diseases. We do this through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA's MOVR is the first and only data hub that aggregates clinical, genetic, and patient-reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best-in-class care at more than 150 of the nation's top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational conferences, events, and materials for families and healthcare providers. MDA Advocacy supports equal access for our community, and each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. During the COVID-19 pandemic, MDA continues to produce virtual events and programming to support our community when in-person events and activities are not possible. MDA’s COVID-19 guidelines and virtual events are posted at mda.org/COVID19. For more information, visit mda.org.