Press Releases

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Press Releases

  • MDA Offers Limb-Girdle Muscular Dystrophy (LGMD) Genetic Testing Program at No Cost to Families

    MDA, Sanofi Genzyme and EGL Genetics team up to expand access to genetic testing for accurate diagnosis of cause of limb-girdle muscle weakness
    September 30 is LGMD Awareness Day

    CHICAGO, Sept. 28, 2017 — In conjunction with Limb-Girdle Muscular Dystrophy Awareness Day (Sept. 30), the Muscular Dystrophy Association (MDA) announced today that thanks to additional support from Sanofi Genzyme, and in collaboration with EGL Genetics, MDA Care Centers and Care Affiliates are offering genetic testing for individuals experiencing limb-girdle muscle weakness and who do not already have a confirmed genetic diagnosis. This advancement in diagnosis will help more individuals living with unexplained limb-girdle muscle weakness, and their clinicians, find the most accurate treatment path available.

  • MDA’s ‘Live Unlimited’ Campaign Urges Americans to Support Families with Neuromuscular Disease

    CHICAGO, September 20, 2017 — The Muscular Dystrophy Association (MDA) today launched its 2017 “Live Unlimited” campaign set to run through Oct.11, 2017. The three-week awareness and fundraising campaign will feature the “Live Unlimited” stories of three families impacted by a neuromuscular disease who challenged themselves to defy their own perceived limitations. The stories chronicle best friends who crossed the Camino de Santiago together, one woman’s hike across the Pacific Coast Trail and a family from Los Angeles uniting to give their young son a chance to pursue his dreams. MDA is sharing these powerful stories with the American public to help raise awareness and to help more kids and adults living with muscular dystrophy, ALS and related life-threatening diseases feel empowered to pursue their personal and professional goals — to live unlimited.

  • MDA Awards Human Clinical Trial Grant for Myotonic Dystrophy Natural History Study

    CHICAGO, August 30, 2017 – The Muscular Dystrophy Association (MDA) is pleased to announce the award of a human clinical trial grant to Nicholas Johnson, M.D., assistant professor of neurology, pediatrics and pathology at the University of Utah in Salt Lake City, to conduct a natural history study in congenital myotonic dystrophy (congenital DM1). The award, which totals $598,348 over three years, reflects MDA’s commitment to support research that can improve and accelerate the development of future clinical trials, with the ultimate goal being the development of treatments and cures for all the diseases in its program.

  • Jerry Lewis, Longtime MDA National Chairman, Telethon Star and Humanitarian, Dies

    CHICAGO, August 20, 2017 — The Muscular Dystrophy Association is deeply saddened by the death of beloved comedian, performer, humanitarian and former MDA telethon star and national chairman Jerry Lewis. The comic film legend, who led the fight against muscular dystrophy and related neuromuscular diseases for more than 50 years, died today in Las Vegas. He was 91.

  • Jiffy Lube® and MDA Launch 6th Annual Muscle Up!℠ Campaign for Kids and Adults Fighting Muscular Dystrophy

    CHICAGO, August 1, 2017 — Jiffy Lube and the Muscular Dystrophy Association (MDA) are excited to announce that they will again join together for the annual MUSCLE UP!℠ campaign to give kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases the opportunity to live unlimited.

  • Casey’s General Stores Helps Send Kids with Muscular Dystrophy to MDA Summer Camp

    Casey’s and MDA continue the 11-year tradition of raising vital funds for MDA Summer Camp through annual pinup program

    CHICAGO, Aug. 1, 2017 — Beginning today, all Casey’s General Stores locations are raising money to help the Muscular Dystrophy Association (MDA) send kids with muscular dystrophy and related neuromuscular diseases to a life-changing and barrier-free week of fun and friendship at MDA Summer Camp — all at no cost to their families.