About MDA

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related muscle-debilitating diseases impact the families we serve is critical for educating people about the urgent need for action and support. 

For Media Inquires 

Roxan Olivas
Vice President, Public Relations and Community Programs
(520) 529-5305
rolivas@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related muscle-debilitating diseaes. Call our public relations department at (520) 529-5317 or email publicrelations@mdausa.org for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases

  • More than 130 Popeyes Louisiana Kitchen Restaurants Unite in “Appetite for a Cure” Campaign to Help Save Lives

    Sailormen, Inc. franchise rallies their restaurants to raise funds to benefit the Muscular Dystrophy Association

    CHICAGO, January 29, 2018 — Sailormen, Inc., one of the largest domestic franchisees of Popeyes Louisiana Kitchen restaurants, begins the 14th annual “Appetite for a Cure” campaign today that will raise funds for the Muscular Dystrophy Association (MDA) to help kids and adults fighting muscular dystrophy, ALS and related diseases.

  • MDA Announces First U.S. Neuromuscular Disease Registry Report

    MDA seeks to enhance and expand the registry in 2018

    CHICAGO, Dec. 13, 2017 — The Muscular Dystrophy Association (MDA) today announced the release of the Highlights of the MDA U.S. Neuromuscular Disease Registry (2013-2016) report, which describes data collected during the pilot phase of the MDA U.S. Neuromuscular Disease Registry (“the registry”). The Highlights report is available for download via the U.S. Neuromuscular Disease Registry page on mda.org.

  • GPM Investments, LLC to Help Kids with Muscular Dystrophy via Holiday Pinups at more than 980 Convenience Store Locations

    More than 980 GPM Investments, LLC convenience store locations throughout the East Coast and Midwest, including Admiral, Apple Market, BreadBox, fas mart ® , Jiffi Stop, Jiffy Stop, Li’l Cricket, Next Door Store, Roadrunner Markets, Scotchman®, shore stop®, Village Pantry®, Young’s, and their customers, are raising funds for the Muscular Dystrophy Association through a holiday pinup campaign to help kids and adults fighting muscular dystrophy and related life-threatening diseases.