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Medical Educational Resource
Transition in Patients with Treatable Disorders without Fixed Weakness or Who Experience Slowly Progressive Symptoms around the Age of Transition
Activity Snapshot
This activity has received an educational grant from PTC Therapeutics Inc.
Faculty
![John Brandsema, MD](https://www.mda.org/sites/default/files/styles/med_ed_faculty/public/2021/03/meded/headshot/J-Brandsema_1.jpg?itok=CoEDu1C-)
Children’s Hospital of Philadelphia
![Lauren Elman, MD](https://www.mda.org/sites/default/files/styles/med_ed_faculty/public/2021/03/meded/headshot/elman_lauren_1.jpg?itok=q3mLjqb2)
Perelman School of Medicine at the University of Pennsylvania
![Vanessa Battista, MS, RN, CPNP-PC, CHPPN](https://www.mda.org/sites/default/files/styles/med_ed_faculty/public/2021/03/meded/headshot/battista_headshot_1.jpg?itok=u_k1ney8)
The Children's Hospital of Philadelphia Neuromuscular Program
![Sarah Clark Stoney, MSW, LSW](https://www.mda.org/sites/default/files/styles/med_ed_faculty/public/2021/03/meded/headshot/Stoney_Headshot_1.jpg?itok=E7vctAr5)
The Children’s Hospital of Philadelphia
![Cynthia Clyburn, LSW](https://www.mda.org/sites/default/files/styles/med_ed_faculty/public/2021/03/meded/headshot/clyburn_cynthia_1.jpg?itok=QNkSaRwI)
Hospital of the University of Pennsylvania, Department of Neurology
The transition from pediatric to adult care is a challenging time for patients with neuromuscular disease and their families, as well as for providers. Increased use of disease-modifying treatments will likely lead to increased numbers of patients going through the transition process, and providers need to be aware of best practices to ensure this process is beneficial to all stakeholders. Part three of this series will focus on neuromuscular disease patients who have treatable disorders without fixed weakness or who experience slowly progressive symptoms around the age of transition.