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Muscular Dystrophy Association Welcomes Amanda Baze Hall to Board of Directors
Strategic Communications Leader, Philanthropic Executive, and Longtime MDA Community Member to Help Advance the Future of Neuromuscular Care and Advocacy
New York, NY, Thursday, February 26, 2026 – The Muscular Dystrophy Association (MDA) announced the appointment of Amanda Baze Hall to its Board of Directors. A respected strategic communications executive and philanthropic leader who lives with congenital myopathy, Hall also brings a deeply personal connection to MDA’s mission. She is an enthusiastic alumna of MDA Summer Camp, an experience that helped shape her independence, confidence, and lifelong community.
Governor Brad Henry, Chairman of the MDA Board of Directors, expressed his enthusiasm for Hall’s appointment, stating, “We are proud to welcome Amanda Baze Hall to the Muscular Dystrophy Association’s Board of Directors. She brings alignment between professional excellence and lived experience. Amanda understands the neuromuscular community firsthand, and she also understands how to build strategy, reputation, and results at a national level. That perspective strengthens our Board as we guide MDA through its next chapter of growth and impact.”
As a child and young adult, Hall attended MDA Summer Camp, where she developed independence and critical skills in self-advocacy while building lifelong friendships. Among those connections is fellow MDA Board member Matthew Plummer, who also lives with spinal muscular atrophy (SMA) and shares a similar journey through the MDA community. These formative experiences continue to inform Hall’s leadership and commitment to advancing opportunity and access for individuals living with neuromuscular diseases.
Hall shared her appreciation for the opportunity to serve, saying, “The Muscular Dystrophy Association has been part of my life for as long as I can remember. Growing up with congenital myopathy and attending MDA Summer Camp gave me independence, confidence, and a network of lifelong friendships that shaped who I am today. It is an incredible honor to now serve on the Board of Directors and help ensure that the next generation of families has access to the same life-changing support, care, and community.”
In her new role on the Board of Directors, Hall will help guide MDA’s strategic priorities as the organization accelerates research breakthroughs, expands access to expert multidisciplinary care through its nationwide Care Center Network, and strengthens advocacy efforts on behalf of individuals and families.
Sharon Hesterlee, PhD, President and CEO of MDA, added, “Amanda represents the future of the Muscular Dystrophy Association. She pairs her lived experience with national leadership in communications and philanthropy, and that makes our Board stronger. As we expand access to care and accelerate our research, her voice will help keep our strategy grounded in the people we serve.”
Hall’s appointment reflects MDA’s continued commitment to assembling a Board of Directors that combines strategic expertise with authentic connection to the communities it serves.
About Amanda Baze Hall
Amanda Baze Hall is a seasoned communications and philanthropic executive with extensive experience leading national campaigns, brand strategy initiatives, and cross-sector partnerships. She lives with congenital myopathy and has been connected to the Muscular Dystrophy Association since childhood, including as an MDA Summer Camp participant. Throughout her career, she has worked at the intersection of purpose and performance, helping organizations elevate their missions, engage stakeholders, and drive measurable impact. Hall is widely recognized for her ability to build collaborative relationships across corporate, nonprofit, and community sectors to advance causes that strengthen health, equity, and opportunity.
Media contact press@mdausa.org.
About Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) has been at the center of progress for people living with muscular dystrophy, ALS, and over 300 other neuromuscular conditions for 75 years. We unite researchers, clinicians, advocates, and families to speed the pace of discovery, improve access to expert care, and ensure inclusion in every aspect of life. Our mission is simple: give the people we serve the tools and opportunities to live longer, more independent lives. To learn more visit mda.org. Follow MDA on social media on Instagram, Facebook, X, Threads, Bluesky, TikTok, LinkedIn, and YouTube.
