Helen Paves Fund for Care and a Cure
The Helen Paves Fund for Care and a Cure was created in collaboration with beauty expert and ALS advocate Ken Paves in memory of his mother, Helen, who passed away in May 2022 after a courageous battle with amyotrophic lateral sclerosis (ALS). The fund will support research and multidisciplinary care through MDA’s nationwide network of specialized ALS care centers. MDA ALS Care Centers will now be known as the Helen Paves MDA ALS Care Center Network.
“My mother fought ALS with her trademark tenacity and grace, but as her disease progressed, she became less focused on her personal battle and more deeply invested in winning the war on ALS through innovations in research, specialized care and the comfort of community.” -Ken Paves.
Support the Fight Against ALS
One third of MDA’s national network of care centers specialize in ALS care. Your gift to the Helen Paves Fund for Care and a Cure will help bring state-of-the-art treatment to patients, while offering compassionate support for families and caregivers.
Learn More About Helen and Ken Paves
MDA in Action: Supporting People Living with ALS
MDA Care Center Network
MDA Care Centers and Affiliates, located within more than 150 leading health care institutions across the United States, form the central hub for expert clinical care and medical research. Each year, our Care Center Network provides tens of thousands of appointments for people living with ALS and other neuromuscular diseases. Individuals can receive specialized multidisciplinary care, explore clinical trial opportunities, and stay connected with MDA and the wider neuromuscular community.
Find Support and Resources
You do not have to face ALS or any neuromuscular disease on your own. Help is available whenever you need it. The MDA Resource Center provides individualized support by phone or email so that individuals and families can access trustworthy disease information, helpful resources, and other forms of guidance.
