Press Releases

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Press Releases

  • MDA Awards Human Clinical Trial Grant for Myotonic Dystrophy Natural History Study

    CHICAGO, August 30, 2017 – The Muscular Dystrophy Association (MDA) is pleased to announce the award of a human clinical trial grant to Nicholas Johnson, M.D., assistant professor of neurology, pediatrics and pathology at the University of Utah in Salt Lake City, to conduct a natural history study in congenital myotonic dystrophy (congenital DM1). The award, which totals $598,348 over three years, reflects MDA’s commitment to support research that can improve and accelerate the development of future clinical trials, with the ultimate goal being the development of treatments and cures for all the diseases in its program.

  • Jerry Lewis, Longtime MDA National Chairman, Telethon Star and Humanitarian, Dies

    CHICAGO, August 20, 2017 — The Muscular Dystrophy Association is deeply saddened by the death of beloved comedian, performer, humanitarian and former MDA telethon star and national chairman Jerry Lewis. The comic film legend, who led the fight against muscular dystrophy and related neuromuscular diseases for more than 50 years, died today in Las Vegas. He was 91.

  • Jiffy Lube® and MDA Launch 6th Annual Muscle Up!℠ Campaign for Kids and Adults Fighting Muscular Dystrophy

    CHICAGO, August 1, 2017 — Jiffy Lube and the Muscular Dystrophy Association (MDA) are excited to announce that they will again join together for the annual MUSCLE UP!℠ campaign to give kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases the opportunity to live unlimited.

  • Casey’s General Stores Helps Send Kids with Muscular Dystrophy to MDA Summer Camp

    Casey’s and MDA continue the 11-year tradition of raising vital funds for MDA Summer Camp through annual pinup program

    CHICAGO, Aug. 1, 2017 — Beginning today, all Casey’s General Stores locations are raising money to help the Muscular Dystrophy Association (MDA) send kids with muscular dystrophy and related neuromuscular diseases to a life-changing and barrier-free week of fun and friendship at MDA Summer Camp — all at no cost to their families.

  • Senate’s skinny repeal bill will have a huge and harmful impact on health care coverage, say 12 patient and provider organizations

    WASHINGTON, D.C., July 27, 2017 – 12 non-partisan patient and provider groups representing millions of Americans issued the following statement today on the “skinny repeal” legislation the Senate will consider this week:

    “Passage of the skinny repeal bill by the Senate will be a devastating blow to our health insurance system and the Americans who depend upon it.

  • MDA, AAN and ABF Award Clinical Research Training Fellowship for Muscular Dystrophy

    Fellowship awarded to Johanna Hamel will support her work in myotonic dystrophy

    CHICAGO, July 13, 2017 – The Muscular Dystrophy Association (MDA), together with the American Academy of Neurology (AAN) and the American Brain Foundation (ABF), is pleased to announce the award of a clinical research training fellowship in muscular dystrophy to Johanna Hamel, M.D., a neurologist at the University of Rochester in New York, for her work in myotonic dystrophy (DM), the most common adult-onset form of muscular dystrophy.