About Us

We're here to transform the lives of people affected by neuromuscular disease.

Press Releases

  • Casey’s General Stores Raises $1.35 Million to Help Send Kids with Muscular Dystrophy to MDA Summer Camp

    Funds raised through 2017 pinup campaign help Casey’s reach $9 million mark in total funds raised for MDA families over decade-long partnership

    CHICAGO, October 17, 2017Casey’s General Stores and its customers in 15 states joined together this August to raise $1.35 million during the Muscular Dystrophy Association's Summer Camp pinup program to help kids fighting muscular dystrophy and related life-threatening diseases experience a week of fun and friendship at MDA Summer Camp — all at no cost to their families.

  • MDA Taps Global Health Care Leader as CEO to Leverage New Breakthroughs and Amplify Mission

    Lynn O’Connor Vos will lead new era of neuromuscular disease research and services to transform and save lives

    CHICAGO, October 10, 2017 — After a nationwide search, the Muscular Dystrophy Association (MDA) today announced it has appointed Lynn O’Connor Vos as President and Chief Executive Officer. Vos previously was Global Chief Executive Officer of Greyhealth Group (ghg), a leading health care communications agency and part of the global WPP Group.

  • MDA Offers Limb-Girdle Muscular Dystrophy (LGMD) Genetic Testing Program at No Cost to Families

    MDA, Sanofi Genzyme and EGL Genetics team up to expand access to genetic testing for accurate diagnosis of cause of limb-girdle muscle weakness
    September 30 is LGMD Awareness Day

    CHICAGO, Sept. 28, 2017 — In conjunction with Limb-Girdle Muscular Dystrophy Awareness Day (Sept. 30), the Muscular Dystrophy Association (MDA) announced today that thanks to additional support from Sanofi Genzyme, and in collaboration with EGL Genetics, MDA Care Centers and Care Affiliates are offering genetic testing for individuals experiencing limb-girdle muscle weakness and who do not already have a confirmed genetic diagnosis. This advancement in diagnosis will help more individuals living with unexplained limb-girdle muscle weakness, and their clinicians, find the most accurate treatment path available.

  • Muscular Dystrophy Association and Strength, Science & Stories of Inspiration to Announce Neuromuscular Disease Fellowship Award

    Recipient to be honored at SSSI’s 4th Annual Benefit Event

    CHICAGO, Sept. 28, 2017 — The Muscular Dystrophy Association (MDA) and Strength, Science & Stories of Inspiration (SSSI) will honor the recipient of the 2017 SSSI-MDA Fellowship Award at SSSI’s 4th Annual Benefit event on Sunday, Oct. 1, 2017. The fellowship will provide $40,000 over two years to a promising postdoctoral scholar, Maya Maor Nof, from Stanford University to support a high-risk, high reward research project in neuromuscular disease.

  • MDA’s ‘Live Unlimited’ Campaign Urges Americans to Support Families with Neuromuscular Disease

    CHICAGO, September 20, 2017 — The Muscular Dystrophy Association (MDA) today launched its 2017 “Live Unlimited” campaign set to run through Oct.11, 2017. The three-week awareness and fundraising campaign will feature the “Live Unlimited” stories of three families impacted by a neuromuscular disease who challenged themselves to defy their own perceived limitations. The stories chronicle best friends who crossed the Camino de Santiago together, one woman’s hike across the Pacific Coast Trail and a family from Los Angeles uniting to give their young son a chance to pursue his dreams. MDA is sharing these powerful stories with the American public to help raise awareness and to help more kids and adults living with muscular dystrophy, ALS and related life-threatening diseases feel empowered to pursue their personal and professional goals — to live unlimited.