Visit MDA.org/Vote for essential information on polling place accessibility, voting options, and voter rights for people living with disabilities.

Medical Educational Resource

We're accelerating the delivery of treatments and cures.

Transitions in Care in SMA Patient #3: Supporting social/emotional health during transition in care

Activity Snapshot

Activity Type: 
Print/PDF
Release Date: 
Wednesday, April 13, 2022

Faculty

Vanessa Battista, DNP, MBA, MS, RN, CPNP-PC, CHPPN

Children’s Hospital of Philadelphia Philadelphia, PA

Activity Overview: 

This case study will explore supporting social/emotional health during the transition in care in patient #3 (19-year-old female).

Learning Objectives: 
  • ·Identify factors that affect disease course in spinal muscular atrophy (SMA)

    • SMA subtype, time of onset or diagnosis, vigilant respiratory and multidisciplinary care, approved therapies, etc.

  • Understand the differing needs of pediatric vs adult patients with SMA, with emphasis on the importance of psychosocial support for adult patients

  • Implement proper medical management for transitions in care, according to best practice guidelines that help address issues specifically encountered by patients with SMA