National ALS Registry

The National Amyotrophic Lateral Sclerosis (ALS) Registry allows people with ALS to get involved in research and help future generations. Research today may lead to a better understanding and potential treatments tomorrow. By signing up for the National ALS Registry, being counted, and taking risk factor surveys, people living with ALS can help find answers.

How you can take part

  • 1. Join the Registry
  • 2. Complete the Registry risk factor surveys and tell your story
  • 3. Donate specimens to the National ALS Biorepository
  • 4. Learn about clinical trials & research studies

Visit the National ALS Registry website to learn more.

Have a specific question you need answered?

Email Us Your Question

Find MDA
in your Community