A Message from Sharon Hesterlee, PhD, interim President and CEO
Whether this is your first visit or one of many, welcome.
If you are living with a neuromuscular disease or caring for someone who is, welcome.
If you are advancing care as a physician or clinician, or supporting this mission as a partner, funder, or friend, welcome.
You belong here.
Since 1950, MDA has led the field in research, care, and advocacy for people living with neuromuscular diseases. We’ve delivered real progress: research that supports more accurate diagnoses, stronger care models, and therapies that were unthinkable a generation ago. We continue to work together to elevate the voices of our community, driving regulatory and legislative policies that recognize the agency and dignity of people living with neuromuscular disease. Lastly, we have we created a community where people of all ages and any diagnosis can find connection, education, and resources.
As a neuroscientist and as MDA’s interim President and CEO, I see the path ahead clearly: full of urgency, grounded in evidence, and driven by people like you. Thank you for being here.
Let’s keep going – together.
Mission Statement
The Muscular Dystrophy Association’s mission is to empower the people we serve to live longer, more independent lives.
MDA is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 other neuromuscular conditions. For 75 years, MDA has led the way in accelerating research, advancing care, and advocating support and inclusion of families living with neuromuscular disease.
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Accelerating Scientific Discovery and Breakthroughs
Transforming research into real world treatment and therapies.
Explore the Science -
Access to Comprehensive Care and Resources
Redefining what it means to live with neuromuscular disease.
Experience the Care -
75 Years
of Progress and ImpactOne community. A world of impact.
Our History
75 years and counting.
Neuromuscular diseases take away abilities many of us take for granted— moving, speaking, eating, even breathing.
At MDA, we’re funding innovative research that leads to real world treatments, changing the landscape for people living with these conditions. We also provide access to expert care, trusted resources and a supportive community, empowering people living with neuromuscular disease to live longer, stronger and on their own terms.
About Neuromuscular DiseasesGet Involved
There are many ways to get involved with MDA. Whether you’re looking to create a fundraiser, host a game night, volunteer at a camp, run a marathon, or advocate for the cause, the ways to get involved are endless.
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Start a Fundraiser
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Become a Volunteer
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Start Your Monthly Gift of $19 today
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MDA Let's Play
for a Cure -
Advocate for MDA
Latest Stories
For the latest happenings in the MDA community and to read inspiring stories, browse the MDA blog.
Press Releases
Meet Our Partners
These partners are empowering lives through science and care for MDA families.
Join Us
Sign up to receive email updates on volunteer opportunities and the impact you’re making for families.
MDA Resource Center: We’re Here For You
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.
