Jakari is a fun-loving 12-year-old who lives in Jacksonville, FL. Jakari was diagnosed at the age of seven with Duchenne muscular dystrophy (DMD). DMD is a disease that gradually weakens the skeletal, or voluntary, muscles, those in the arms, legs and trunk. By the early teens or even earlier, the heart and respiratory muscles also may be affected. In school, Jakari’s favorite subject is math. He says that he is the smartest of his brothers! His very favorite thing to do is play wrestling games on the PlayStation 4. Jakari loves games! Jakari has been going to MDA summer camp for four years. His favorite counselor is Jacob, who he had for the first time this year.
Lindsay lives with her mom and dad and brother in Gardner, Kansas where she serves as MDA’s state goodwill ambassador. Lindsay was diagnosed with spinal muscular atrophy, type 2 in May 2004, at eight months old, and relies on a power wheelchair for all of her mobility. Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Lindsay is very much a girly girl and loves making others smile. She enjoys spending time with her friends, sleepovers, animals and movies. Lindsay and her family are very involved in helping MDA make a difference not only in their family but for all our other families.
Seth lives at home in Stephenville, TX with his dad, mom and older sister. Seth was diagnosed at nine months old with spinal muscular atrophy, type 2. He has an incredible talent and love of drawing. He enjoys going to the movies and to theater plays, and loves playing with Legos, superheroes, his iPad and video games on the Wii U. Seth has attended MDA Summer Camp the last two years.