Be a light of hope this holiday season. Ignite more progress, restore more freedom, and inspire more hope for families living with neuromuscular disease.

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Facioscapulohumeral muscular dystrophy (FSHD)
Facioscapulohumeral muscular dystrophy (FSHD)
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Diagnostic Odyssey of Pompe Disease
Diagnostic Odyssey of Pompe Disease
MDA Engage Community Webinars
Presenters: Dr. Jennifer Cohen, from Duke University
Supported by: Amicus Therapeutics, Sanofi Genzyme
Jun 7, 2021
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
MDA Engage Symposia
Supported by: Sarepta Therapeutics
Jun 5, 2021
Adult Neuromuscular Seminar
Adult Neuromuscular Seminar
MDA Engage Community Education Seminars
May 22, 2021
Gene Therapy and Duchenne Muscular Dystrophy
Gene Therapy and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Farida Abid, MD, Neurologist at Texas Children’s Hospital
May 20, 2021
Virtual Medical Visits: A 2021 Update
Virtual Medical Visits: A 2021 Update
MDA Engage Community Webinars
Presenters: Dr. Victoria Lawson and Yvonne Lanouette from Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire
Supported by: Genentech
May 13, 2021
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Alexion, Amylyx, Apellis, Biogen, Cytokinetics
May 12, 2021
ALS Care and Research Updates
ALS Care and Research Updates
Facebook Live
May 6, 2021
Preparing for the future - Finding the best college and career for you
Preparing for the future - Finding the best college and career for you
MDA Engage Community Webinars
Presenters: Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community
Supported by: Numotion Foundation
May 5, 2021
2021 MDA Engage Myotonic Dystrophy Symposium
2021 MDA Engage Myotonic Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences
Apr 28, 2021
Transitions Care from Pediatric to Adult
Transitions Care from Pediatric to Adult
MDA Engage Community Education Seminars
Apr 10, 2021
2021 MDA Engage Transitions in Care from Pediatric to Adult Care
2021 MDA Engage Transitions in Care from Pediatric to Adult Care
MDA Engage Community Education Seminars
Apr 10, 2021
Mental Health and Duchenne Muscular Dystrophy
Mental Health and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Dr. Seth Sorenson, assistant professor and clinical neuropsychologist through the University of Arkansas for Medical Sciences and Arkansas Children’s Hospital in Little Rock, Arkansas
Apr 8, 2021
Maintaining Breathing Function with a Neuromuscular Disease
Maintaining Breathing Function with a Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Debbie Rhodes, Respiratory Therapist and Manager at INTEGRIS Health
Supported by: Hillrom
Mar 30, 2021
Gene Therapy and Neuromuscular Disease
Gene Therapy and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Sanjay Bidichandani, MBBS, PhD, Genetics Section Chief and professor of Pediatrics at the University of Oklahoma Health Sciences Center
Mar 23, 2021
An Introduction to Edgewise Therapeutics
An Introduction to Edgewise Therapeutics
Community Industry Update Webinars
Supported by: Edgewise
Mar 18, 2021
MDA Engage: Mitochondrial Myopathy Symposium
MDA Engage: Mitochondrial Myopathy Symposium
MDA Engage Symposia
Mar 6, 2021
Pediatric Care for Neuromuscular Disease
Pediatric Care for Neuromuscular Disease
MDA Engage Community Education Seminars
Feb 20, 2021
2021 MDA Engage Pediatric Seminar
2021 MDA Engage Pediatric Seminar
MDA Engage Community Education Seminars
Feb 20, 2021
Accessible Fashion
Accessible Fashion
Facebook Live
Supported by: Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Feb 18, 2021
Psychosocial Support for Living with a Chronic Illness
Psychosocial Support for Living with a Chronic Illness
MDA Engage Community Webinars
Presenters: Clinical Nurse Counselor, Mary Holt-Paolone
Jan 28, 2021
Understanding ZOLGENSMA
Understanding ZOLGENSMA
Community Industry Update Webinars
Supported by: Novartis Gene Therapies
Dec 18, 2020
An Overview of a New Treatment for SMA
An Overview of a New Treatment for SMA
Community Industry Update Webinars
Supported by: Genentech
Dec 8, 2020
Caring for the Caregiver
Caring for the Caregiver
MDA Engage Community Webinars
Presenters: Neuroscience social worker, Jennifer Reidell, from Mayo Clinic in Jacksonville, FL
Supported by: Genentech
Dec 3, 2020
Neuromuscular Disease Research Year In Review
Neuromuscular Disease Research Year In Review
Facebook Live
Supported by: Genentech, Mitsubishi Tanabe Pharma America, Sanofi Genzyme
Dec 1, 2020