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MDA Programs

Walking Strong

For Rene Runions, a 19-year-old sophomore at Saint Louis University (SLU), MDA has been a part of her life since she was diagnosed with Charcot- Marie-Tooth disease (CMT) in the sixth grade. She started attending MDA Summer Camp in her home state of Illinois and later was named the Illinois State Ambassador. 

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Productive Partnership

Since first partnering with MDA in 1985, Acosta, a full-service sales and marketing company focused on packaged consumer goods, has raised more than $82 million for MDA’s mission. Acosta’s staff support MDA through fundraising events, marketing promotions and even volunteering at MDA Summer Camps. Here are just some of the ways Acosta offices across the country have showed their support for MDA:

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Meet MDA’s New President & CEO

Global health care leader Lynn O’Connor Vos joined the Muscular Dystrophy Association last fall as its new president and CEO. With a clinical nursing background and decades of experience building and leading health companies to drive technology and innovation in patient care, Lynn says her entire career has led to this unprecedented moment with MDA.

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MDA Offers LGMD Genetic Testing Program

MDA families are at the heart of all we do. To help provide the MDA families we serve with the best possible care and support from day one, we are pleased to announce the continuation of the limb-girdle muscular dystrophy (LGMD) genetic testing program, thanks to additional support from Sanofi Genzyme.

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MDA Team Momentum: Running Strong

Every year, hundreds of endurance runners combine their passion for the sport with their passion for MDA, raising thousands of dollars for MDA. Matt Kendall (pictured above on the left), father of 5-year-old Archer who has Duchenne muscular dystrophy (DMD), raised more than $50,000 when he ran the United Airlines NYC Half-Marathon with MDA Team Momentum in March. 

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In Loving Memory of Jerry Lewis (1926-2017)

“The highlight of my time as MDA National Ambassador was interacting with Jerry. Not a moment could pass without an opportunity to laugh myself silly. Jerry Lewis will always be synonymous with pure dedication to a cause.” — Rocco Arizzi, National Ambassador 1979–1980, pictured above with Jerry Lewis

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MDA Muscle Walk: Walking the Walk

“That encouraged us to start early this year,” Nash says. “And we ended up being No. 4 in the nation.” Team Matthew raised more than $24,000 this year through many different avenues: social media, the family’s friends and relatives, and Nash’s work in the wine industry. Beyond feeling great about raising money for a cure, the experience of being at the MDA Muscle Walk of St. Louis provided the family with fond memories. 

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Partners in Progress

Since 2006, Casey’s General Stores have supported MDA through MDA Muscle Team and the MDA Summer Camp Pinup Campaign, which lets shoppers purchase a $1 or $5 pinup (which includes a 7UP coupon) to display in the store. Over the past 10 years, Casey’s stores have raised more than $8 million with this campaign, including $1.5 million in 2016 alone. 

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Carry On

For Ed Walsh, who has been a U.S. Postal Service letter carrier for 23 years, getting involved with MDA came naturally. Walsh is a member of the National Association of Letter Carriers (NALC) Branch 358 in New York. NALC was one of MDA’s first national sponsors, originally partnering with MDA in 1952. Beyond that official partnership, Walsh and his fellow branch members have found personal connections to MDA. 

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Helping Hands

An MDA partner since 2001, Lowe’s takes great pride in improving the communities it serves. To date, Lowe’s and its loyal customers have raised more than $63 million to support MDA’s mission. Lowe’s also supports MDA by encouraging their employees to volunteer throughout the year and to join together in select improvement projects. This year’s projects included helping to construct new decks and ramps for the MDA Summer Camp at Camp Calvin Crest in Nebraska.

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MDA Resource Center: We’re Here For You

Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.