Emergency Resources for MDA Families

Call 911 if you are in need of immediate medical attention.

Help from MDA: Following local weather emergencies, MDA actively tries to reach all individuals it serves who live in the affected areas to assess their well-being and offer assistance. If you have evacuated to a different area and need MDA services (including help with durable medical equipment or visiting an MDA clinic), find the nearest MDA office by entering the ZIP code of your current location, or by calling (800) 572-1717 (weekdays 9 a.m. to 5 p.m. Central time).

MDA pamphlet: Preparing for Emergencies: A Checklist for People with Neuromuscular Disease

General resources

211: For local information about help with food, housing, health care and more, dial 211 or visit 211.org. (Note: The 211 service is not available in all areas.)

DisasterAssistance.gov: To obtain the most accurate list of disaster assistance programs for which you may be eligible, complete this anonymous questionnaire at disasterassistance.gov/disaster-assistance/questionnaire.

Emergency Preparedness (information from Disability.gov)

Mental health help: The Centers for Disease Control and Prevention (CDC) offers a list of resources specifically designed for those suffering stress and trauma as a result of disasters or other emergencies. Go to emergency.cdc.gov/mentalhealth.

In addition, the SAMHSA Disaster Distress Helpline provides 24/7, year-round crisis counseling and support. Call (800) 985-5990 or (800) 846-8517 (TTY for deaf/hearing impaired); or text TalkWithUs to 66746.

Prepare for Emergencies Now: Information for People with Disabilities (Ready.gov brochure)

Preparing Makes Sense for People with Disabilities and Other Access and Functional Needs (FEMA video)

Red Cross:

Salvation Army: For information about what the Salvation Army is doing in areas affected by a weather emergency, go to disaster.salvationarmyusa.org.

State offices and agencies of emergency management: fema.gov/emergency-management-agencies

Additional MDA resources

How to Get Personal Care Assistance in Emergency Shelters
A federal program provides personal care aides for individuals with disabilities who need to stay in emergency shelters during a declared disaster.

What Will You Do if the Power Goes Out?
Heavy storms often cause power outages, which is problematic for people who rely on electrically powered equipment to breathe. Fortunately, there are a variety of backup power options that can be used.

Going to the Emergency Room: Tips for People with Neuromuscular Diseases
Because many emergency room doctors and nurses may not be familiar with neuromuscular disorders, a trip to the ER could result in inappropriate care for some people with muscle diseases. This article describes some common problems that can occur in the ER and provides tips for avoiding these scenarios.