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You can help transform the lives of children and adults living with neuromuscular disease, just like the ones you’ve seen on television. Your monthly support means:

  • Groundbreaking research to find cures
  • Providing the best treatment and care for children and families
  • Offering support and care in 150 state-of-the-art centers across the U.S., and
  • Helping children know that anything is possible!

When you use your credit card to give $19 or more a month, you’ll receive a special Team MDA t-shirt so you can proudly show your support. We are grateful for your generosity!

  • Skip to Ethan's story.
  • Skip to Reagan's story.
  • Skip to Justin's story.

Ethan’s Story

Ethan is 12 years old and lives with Duchenne muscular dystrophy, a diagnosis he received shortly before turning 2 years old. Ethan loves his family and enjoys time with his parents and his sister. He has a big personality that fills a room, an exuberance and zest for life that is contagious, and he loves having fun and telling jokes. He's enjoyed being able to bring a smile to people's faces through his experiences as national ambassador for MDA and by telling jokes through his "Joke a Day for MDA" efforts. Ethan and his family appreciate MDA's Care Center Network, his mom sharing that "having the whole care team of doctors, nurses, rehab therapies and more all working together to provide best-in-class care for your son, it’s incredibly supportive and appreciated!" Ethan aspires to be a vet technician when he grows up, so he can care for animals.

Reagan’s Story

Reagan is a typical 16-year old in many ways... she enjoys traveling, reading and hanging out with her friends and family. As is the case for everyone, she’s also very unique. Reagan lives with spinal muscular atrophy (SMA), a diagnosis she received when she was 1-year old. Reagan and her family appreciate that MDA funds research. Reagan benefits from a drug that started with MDA-funded research, and thanks to that treatment, Reagan has gained strength that has helped her many ways - allowing her to hug her mom when she couldn't before, and allowing her to have stronger lung function and better overall health. Reagan is looking to the future, like many High School Juniors, and she looks forward to going to school out west to study psychology and marketing.

Justin’s Story

Justin is 21 years old and was born with merosin deficient congenital muscular dystrophy. He has been involved with MDA as long as he can remember – attending MDA Care Center, sharing his story on the national MDA Telethon when he was in middle school, serving as MDA National Ambassador in 2018 and 2019 – and he remains an active advocate for MDA and the neuromuscular community. Justin really appreciates the MDA Care Center network. "My MDA Care Center at Boston Children's Hospital has provided me with knowledgeable and nuanced interdisciplinary care,” Justin said. “They have given me a strong foundation of health for which I can now thrive as I move into young adulthood." Justin is currently a senior at Worcester Polytechnic Institute, pursuing a combined bachelor and master’s degree in bioinformatics and computational biology. Outside of his busy school and extracurricular schedule, Justin enjoys drinking tea and playing piano.