Help Through Services and Support

MDA is committed to helping kids and adults with muscle-debilitating diseases live longer and grow stronger. We offer numerous services and resources in hometowns across America that provide care, support and guidance through every step of your journey.

Frequently Asked Questions (FAQ)

  • How about more reporting on local MDA events?

    Because Quest is national in scope, and because hundreds of MDA events are held each year in communities across the country, we simply don’t have the space to mention all of them. Check with your local MDA office to be sure you’re receiving your local newsletter or other mailings for announcements of events in your area.

  • Why does Quest have so many ads for expensive products?

    Many readers tell us they find the ads in Quest informative. They show products you may need and tell you where to get more information. They touch on many of the key areas in living with neuromuscular diseases — mobility, transportation, communication, bathroom convenience and accessibility, respiration, travel, sleep, transfers and much more.

    Of course, the primary reason for ads is economic. Magazines sell ad space, and the revenue from advertisers helps pay for us to produce Quest and deliver it to you. 

    When you do contact a Quest advertiser, please be sure to say you saw the ad in Quest. That kind of feedback encourages those companies to invest more in our magazine.

  • Why don’t you write more about my disease?

    With more than 40 diseases in MDA’s program, and only four issues of Quest per year, you can see that it’s logistically impossible to do a major feature on each disease. MDA takes a big-picture perspective across the full spectrum of neuromuscular diseases to uncover scientific and medical breakthroughs that accelerate treatments and cures. Our more in-depth articles on research and medical topics are chosen because they have relevance for multiple diseases in our program and because new insights apply to more than one disease. 

    Every issue of Quest reports new research breakthroughs and clinical trials in “Progress Now,” so be sure to read that section for mentions of the disorder that interests you, and also to learn more about how research in one disease is impacting research in several other neuromouscular diseases. If you haven’t seen a “Progress Now” item about your disease in a while, that’s because the scientists haven’t reported anything new — yet. When they do, you’ll read about it in Quest Magazine.

  • Why not make Quest available at no cost to people with muscular dystrophy, or sell it in more places?

    Quest Magazine is absolutely free to everyone who’s registered with MDA. If you aren’t getting your copy by mail, notify your local office. They’re responsible for getting correct, updated address information to us.

    We don’t place the magazine on newsstands because the subject matter is specialized and wouldn’t appeal to a mass audience; however, both the magazine is available at your local MDA office and your MDA Care Center. 

    Back issues of Quest — as well as MDA/ALS Newsmagazine — are available online. (The MDA/ALS Newsmagazine is no longer available in print and is now an online archive.)

    The lovely thing about a magazine is that you can hold onto it for as long as you wish. If a story doesn’t apply to your situation now, you may still want to read it later. Or you can flag articles that you’d like to re-read, or ads for products that may be needed in the future.

  • What is Quest Extra?

    It’s a Web-exclusive feature we started in 2005 to present stories that didn’t fit in the limited space of Quest's print version. Instead of omitting them, we put them online — giving you an extra serving of articles with do-it-yourself tips about daily living and more stories of inspriration from children and adults living with muscle-debilitating diseases. 

  • Can you give us more stories about real people who are dealing with neuromuscular diseases in real life?

    We write about “real people” as much as possible. Quest usually looks for those whose stories are a little different or special. And when we write about subject areas such as parenting or job hunting, we interview people who’ve had experiences in those areas.

    Of course, the “real people” question works both ways. Reading about someone else’s coping strategies may inspire you; by the same token, your experiences can inform other readers.

    You’re a real person. Let’s hear from you.

  • How can I request permission to link to an MDA publication, reprint MDA material or obtain a photograph?

    All MDA published material is copyrighted and may not be reproduced, published, transmitted or submitted in whole or in part without the prior written consent of MDA.

    To request permission to reproduce something from an MDA publication, including Quest Magazine, please send an email that includes your daytime phone number and a brief explanation of the intended use of the requested material to QUEST@mdausa.org.

  • How can I send a letter to the editor?

    For your feedback on anything MDA, including Quest Magazine, please email your letter to QUEST@mdausa.org. Be sure to include your first and last name, city and state.

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