Medical Educational Resource
Transitioning from Pediatric to Adult Care in Neuromuscular Disease Patients
This activity has received an educational grant from PTC Therapeutics Inc.
The transition from pediatric to adult care is a challenging time for patients with neuromuscular disease and their families, as well as for providers. Increased use of disease-modifying treatments will likely lead to increased numbers of patients going through the transition process, and providers need to be aware of best practices to ensure this process is beneficial to all stakeholders. The first of this three-part series will examine the stages of transition of care, present common challenges and obstacles during transition, and recommended strategies and resources to ensure patients receive optimal care throughout this process.
- Provide education on how improvements in neuromuscular (NMD) care have led to greater function and longer survival
- Provide education on how healthcare, community, and social needs change as patients transition from childhood to adolescence to adulthood
- Provide perspective and guidance on the difficulties that patients and families may face during this transition
- Provide practical advice on the benefits of using best practices leading up to official transition to adult care
- Provide strategies to help patients
- Maintain continuity of multidisciplinary care
- Adhere to treatment guidelines after they transition out of pediatric care centers
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of PeerPoint Medical Education Institute, LLC and Muscular Dystrophy Association. The PeerPoint Medical Education Institute, LLC is accredited by the ACCME to provide continuing medical education for physicians.
The PeerPoint Medical Education Institute, LLC designates this enduring material activity for a maximum of 1 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Release Date: February 24, 2020
Expiration Date: February 23, 2023
Once you have viewed the program, MDA will share back with you instructions for how to obtain your CME credits. If you have questions on this process, please reach out to firstname.lastname@example.org.
The following presenters, planners, editors, or staff have relevant financial relationships to disclose:
“I, or an immediate family member, have at present or have had within the last 12 months, the following affiliation with one or more organizations that could be perceived as a real or apparent conflict of interest in context to the design, implementation, presentation, evaluation, etc. of CME Activities.”
Ms. Vanessa Battista:
AveXis- Zolgensma: Advisory board participation; Honoraria and travel expenses
Dr. John Brandsema:
Biogen, AveXis, Cytokinetics, PTC, Sarepta, Pfizer, Fibrogen, Alexion: Advisory boards, Speakers' Bureau (Biogen), Contracted research; Consulting fees
All other presenters, planners, editors, or staff reported no relevant relationships with the following statement:
“I, or an immediate family member, do not have at present, or within the last 12 months, nor anticipate having financial interest, arrangement or affiliation with any organizations that could be perceived as a real or apparent conflict of interest in context to the design, implementation, presentation, evaluation, etc. of CME Activities.”
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