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Transition in Patients with Treatable Disorders without Fixed Weakness or Who Experience Slowly Progressive Symptoms around the Age of Transition
Activity Snapshot
Activity Type:
On-Demand Webinar
Release Date:
Monday, February 24, 2020
Sponsor Information:
This activity has received an educational grant from PTC Therapeutics Inc.
Faculty
John Brandsema, MD
Neuromuscular Section Head, Division of Neurology
Children’s Hospital of Philadelphia
Lauren Elman, MD
Associate Professor of Neurology
Perelman School of Medicine at the University of Pennsylvania
Vanessa Battista, MS, RN, CPNP-PC, CHPPN
Nurse Practitioner
The Children's Hospital of Philadelphia Neuromuscular Program
Sarah Clark Stoney, MSW, LSW
Licensed Medical Social Worker (Subspecialty Outpatient Neurology Social Worker)
The Children’s Hospital of Philadelphia
Cynthia Clyburn, LSW
Licensed Social Worker
Hospital of the University of Pennsylvania, Department of Neurology
Activity Overview:
The transition from pediatric to adult care is a challenging time for patients with neuromuscular disease and their families, as well as for providers. Increased use of disease-modifying treatments will likely lead to increased numbers of patients going through the transition process, and providers need to be aware of best practices to ensure this process is beneficial to all stakeholders. Part three of this series will focus on neuromuscular disease patients who have treatable disorders without fixed weakness or who experience slowly progressive symptoms around the age of transition.
