At Your Service
Eric Cook, who has limb-girdle muscular dystrophy (LGMD) and uses a power wheelchair, no longer struggles to pick up the TV remote or his glasses when he drops them on the floor. Instead, the 57-year-old retired engineer relies on his service dog, Dusty, to help him with these and other needs. In total, Dusty knows and responds to 40 different commands for everyday tasks like turning on a light switch, pushing an elevator button or opening the refrigerator door. When Cook begins to slump in his wheelchair, he even has a command for Dusty to gently nudge him back into an upright position.Read More
Not Just Horsing Around
It’s good to be back in the saddle.I thought my horseback-riding days were over due to the progression of Friedreich’s ataxia, until I found Therapeutic Riding of Tucson (TROT) in Arizona.I’m finishing up my second 12-week session at TROT, and I’ve noticed that — even with having a neuromuscular disease at age 33 — I’ve experienced many benefits from therapeutic riding.Read More
Enhancing Blood Flow to Exercising Muscles
Ronald Victor admits it: He never set out to study muscular dystrophy. As an adult cardiologist specializing in hypertension (high blood pressure) and neurologic control of cardiovascular mechanisms, he’s a relative latecomer to the muscle field, but far from a reluctant one.Victor, who’s now associate director of the Cedars-Sinai Heart Institute and director of the Cedars-Sinai Hypertension Center in Los Angeles, has been interested for decades in how the body allocates blood supply to various tissues under different conditions — something that’s largely under the control of the autonomic nervous system.Read More
Nonwalkers With SMA At High Risk for Weight Gain
Children and adults with types 2 and 3 spinal muscular atrophy (SMA) who are no longer walking have an increased risk of being overnourished and overweight if they otherwise have relatively good motor function, a multicenter study shows.The results emphasize the importance of a "dedicated and experienced nutritionist" in SMA medical management, the researchers say.Read More
Exercising with a Muscle Disease
Exercise: Love it. Hate it. Gotta do it.In these articles, Quest looks at the many sides of exercise for people with muscle diseases:Much of the conventional wisdom about exercising isn’t true for people with muscle diseases, and doing it wrong may cause irreversible muscle damage.As you read through the exercise articles in the magazine, one thing is clear: Each body is unique, and its owner knows it best. Please filter all this information through your own wisdom and experience, and please share it with your physicians, therapists and trainers.Read More
What Kind of Exercise Can Be Done By ...
Unfortunately, even when MG is under control, as it usually is these days thanks to effective medications, lack of endurance when exercising and excess weight gain as a side effect of medication and inactivity remain problematic. People should not exercise to exhaustion but may undertake submaximal aerobic exercise, such as walking, swimming or using a stationary bicycle. It’s also OK to try some mild resistance exercise, using light weights (no more than 5 to 10 pounds) or stretchable bands. Several short periods of exercise are better than one long one.Read More
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Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 800-572-1717. If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.