Past Events

Join us as we present a one day virtual education symposium focusing on Spinal Muscular Atrophy (SMA).  Pediatric SMA discussion topics will include nutrition and physical therapy management, respiratory care, and Orthopedic challenges. General SMA discussion topics will include current research and clinical trials, SMA drug development roundtable and genetics. The adult SMA topics include gaining independence in activities of daily living, pain management and why multidisciplinary care is important as you age. There will be time at the end of each session for live Q&A.

Nov. 4-7 2021. Orlando, Florida

Chicago, Illinois

Join us as we present a one day virtual education symposium focusing on Myasthenia Gravis (MG).  Discussion topics include Research and clinical trials, treatment guidelines, crisis and emergency management, psychological factors with MG, comparing therapies and their side effects, a drug development roundtable and more. There will be time at the end of each session for live Q&A.

This webinar will be a follow up to the durable medical equipment (DME) webinar held in July. This webinar will discuss eligibility for DME, highlight how to obtain equipment and what to know about maintaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern.

Virtual Celebration August 7, 2021

Many in the neuromuscular community will have a need for some type of durable medical equipment and assistive devices. This webinar will review the different types of equipment and assistive devices, who prescribes equipment, and what questions you should ask your provider before obtaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern.

Gene therapy is being studied as a potential treatment option for DMD (Duchenne Muscular Dystrophy). This webinar will explore what gene therapy is and how it works for individuals living with DMD. The landscape of DMD gene therapy research will also be discussed. The featured presenter of this webinar is neurologist at Texas Children’s Hospital, Farida Abid, MD.

Join us for this Engage Seminar where we discuss content such a best practices in clinical care, research updates, genetics and more topics focusing around ALS.

Selecting where to go to college and what career you may want to go into is a big decision. With more and more members of the neuromuscular disease community attending college and entering the workforce, it is important to have an idea on what questions to ask and what to think about when looking at your career. This webinar will discuss important items to be aware of and to look for when choosing a college. The webinar will also look at tips on how to select a career path. The featured presenter of this webinar is Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community.

Join us for this Engage Seminar where we discuss content related to transitioning care from pediatric to young adult care. Including topics of self advocacy, role of the patient to become more independent, and accessing coordinating care.

Join us for this Engage Symposium where we discuss content such a best practices in clinical care, research updates, palliative care, genetics, exercise and much more surrounding Mitochondrial Myopathy.

There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required.

There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required.