| Event | Date | |
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2021 Boston Marathon presented by John Hancock Boston, Massachusetts |
Oct 11, 2021 | Register |
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2021 Bank of America Chicago Marathon Chicago, Illinois |
Oct 10, 2021 | Register |
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Boston Muscle Team Golf Outing Pine Hills Golf Club, Plymouth MA at Western Lakes Golf Club, Pewaukee, WI |
Sep 29, 2021 | Register |
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Engage Myasthenia Gravis (MG) Symposium Join us as we present a one day virtual education symposium focusing on Myasthenia Gravis (MG). Discussion topics include Research and clinical trials, treatment guidelines, crisis and emergency management, psychological factors with MG, comparing therapies and their side effects, a drug development roundtable and more. There will be time at the end of each session for live Q&A. |
Sep 18, 2021 @ 11:00am ET | Register |
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Engage Duchenne Muscular Dystrophy (DMD) Symposium Join us as we present a one day virtual education symposium focusing on Duchenne Muscular Dystrophy (DMD). Discussion topics include respiratory strategies with DMD, psychosocial Care, preserving range of motion, how DMD effects the GI system, a drug development roundtable and more. There will be time at the end of each session for live Q&A. |
Aug 14, 2021 @ 11:00am ET | Register |
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Engage Webinar: Medical Equipment and Assistive Devices for Neuromuscular Disease (Part 2) This webinar will be a follow up to the durable medical equipment (DME) webinar held in July. This webinar will discuss eligibility for DME, highlight how to obtain equipment and what to know about maintaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern. |
Aug 10, 2021 @ 3:00 PM ET | View |
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Muscle Walk Team up with MDA to raise critical funds and awareness towards our mission by participating in the MDA Muscle Walk. Make your move on a track, in your neighborhood or a nearby park. The choice is yours on how you celebrate! Join our virtual event or at our drive-thru event in Minnesota to help transform the lives of people living with muscular dystrophy, ALS, and related neuromuscular diseases! |
Aug 7, 2021 | Register |
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2021 Virtual MDA Muscle Walk Virtual Celebration August 7, 2021 |
Aug 7, 2021 | Register |
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Accessibility and Inclusion in STEM: A Discussion with General Motors Muscular Dystrophy Association (MDA), in partnership with General Motors, invites you to join us for a panel discussion focused on inclusion, diversity, and accessibility in STEM education and STEM careers. In today’s workforce, careers in science, technology, engineering, and math (STEM) are growing exponentially and more diversity in the field is needed to drive innovation. This discussion will inform and empower youth and young adults living with a neuromuscular disease to consider exploring STEM-based careers. Learn More |
Jul 22, 2021 @ 7:00 - 8:30 pm ET | Register |
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Engage Webinar: Medical Equipment and Assistive Devices for Neuromuscular Disease (Part 1) Many in the neuromuscular community will have a need for some type of durable medical equipment and assistive devices. This webinar will review the different types of equipment and assistive devices, who prescribes equipment, and what questions you should ask your provider before obtaining equipment. The featured presenter of this webinar is physical therapist, Vicky Kern. |
Jul 20, 2021 @ 3:00 PM ET | View |
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Engage LGMD Symposium Join us for this Engage Seminar where we discuss content such a best practices in clinical care, research updates, drug development roundtable and many more topics focusing on LGMD. |
Jun 5, 2021 @ 11:00 AM ET | View |
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Engage Webinar: Gene Therapy and Duchenne Muscular Dystrophy Gene therapy is being studied as a potential treatment option for DMD (Duchenne Muscular Dystrophy). This webinar will explore what gene therapy is and how it works for individuals living with DMD. The landscape of DMD gene therapy research will also be discussed. The featured presenter of this webinar is neurologist at Texas Children’s Hospital, Farida Abid, MD. |
May 20, 2021 @ 3:00 PM ET | View |
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Wings Over Wall Street The Wings Over Wall Street (WOWS) Gala is the centerpiece event of MDA’s fundraising galas in support of ALS. WOWS as brought together the business, philanthropic, and business communities for 21 years, raising over 12.5 million dollars to fund critical research to Unlock the Cure for ALS. WOWS 2021 will be a virtual thought leadership event featuring experts in the ALS research arena, highlighting the promise of MDA funded ALS research towards enhanced treatments, and ultimately a cure. For more information on the program, sponsorships and donations please go to: https://one.bidpal.net/wow21/welcome |
May 20, 2021 | Register |
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Engage ALS Symposium Join us for this Engage Seminar where we discuss content such a best practices in clinical care, research updates, genetics and more topics focusing around ALS. |
May 12, 2021 to May 13, 2021 @ 3:00 PM ET both days |
View |
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MDA Facebook Live: ALS Care and Research Updates Join this live conversation to learn about the latest in care and research updates related to ALS. |
May 6, 2021 @ 3:00pm ET | Watch Now |
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Engage Webinar: Preparing for the future - Finding the best college and career for you Selecting where to go to college and what career you may want to go into is a big decision. With more and more members of the neuromuscular disease community attending college and entering the workforce, it is important to have an idea on what questions to ask and what to think about when looking at your career. This webinar will discuss important items to be aware of and to look for when choosing a college. The webinar will also look at tips on how to select a career path. The featured presenter of this webinar is Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community. |
May 5, 2021 @ 3:00 PM ET | View |
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Engage Myotonic Dystrophy Symposium Join us for this Engage Symposium where we discuss content such a best practices in clinical care, research updates, genetics, drug development panel, and much more surrounding Myotonic Dystrophy. |
Apr 28, 2021 to Apr 29, 2021 @ 11:00 AM ET both days |
View |
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Engage Transitions in Care from Pediatric to Adult Seminar Join us for this Engage Seminar where we discuss content related to transitioning care from pediatric to young adult care. Including topics of self advocacy, role of the patient to become more independent, and accessing coordinating care. |
Apr 10, 2021 @ 11:00 AM ET | View |
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Engage Webinar: Maintaining Breathing Function with a Neuromuscular Disease Respiratory complications are common in neuromuscular disease (NMD). This webinar will shine a light on respiratory management for NMD. We will discuss early signs and symptoms to long term respiratory management strategies for both the pediatric and adult communities. Types of equipment for respiratory support will also be discussed. The featured presenter of this webinar is Respiratory Therapist and Manager at INTEGRIS Health, Debbie Rhodes. |
Mar 30, 2021 @ 3:00 PM ET | View |
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Engage Mitochondrial Myopathy Symposium Join us for this Engage Symposium where we discuss content such a best practices in clinical care, research updates, palliative care, genetics, exercise and much more surrounding Mitochondrial Myopathy. |
Mar 6, 2021 @ 10:00 AM CT | View |
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MDA Engage: Spinal Muscular Atrophy (SMA) There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Nov 14, 2020 @ 8:00am - 1:00pm | View |
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MDA Engage: Florida There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Nov 7, 2020 @ 8:00am - 1:00pm CDT | View |
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MDA Engage Community Education Seminar: Florida 2020 There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Nov 7, 2020 @ 9:00am - 2:15pm CDT | View |
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MDA Engage: Minnesota There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Oct 24, 2020 @ 9:00am - 2:00pm CDT | View |
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MDA Engage: Mississippi There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Oct 17, 2020 @ 9:00am - 2:00pm CDT | View |
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MDA Engage: New York There is no cost to members of the MDA Community or clinicians to attend the event, however, registration is required. |
Oct 3, 2020 | View |
MDA Resource Center: We’re Here For You
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S.