Innovations in Care
MDA Engage: Virtual Family Panel - Facioscapulohumeral muscular dystrophy (FSHD)
Tuesday, June 8, 2021
Event Time: 6:30 - 8:30pm ET
Live, Virtual Event
There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to email@example.com.
Learning from others is a great way for the neuromuscular community to obtain practical, every-day information. This FSHD Family Panel will be comprised of individuals living with FSHD and they will be answering questions from the audience live. Topics covered will include care, research, mental health, wellbeing, life hacks and more. This will be a live, moderated discussion.
Family Panel Moderator
Christine Tardiff, MSW, LICSW, MAPM
Clinical Social Worker, Boston Children's Hospital
Have questions that you would like the panel to address. Please email them to firstname.lastname@example.org with the subject line of Family Panel question.
Not available to join live on June 8th? This event will be recorded for on-demand viewing.
If you have questions about this webinar or other MDA Engage programs, please reach out to email@example.com or you may contact our MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.