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We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Virtual Family Panel - Facioscapulohumeral muscular dystrophy (FSHD)

Tuesday, June 8, 2021
Event Time: 6:30 - 8:30pm ET
Live, Virtual Event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar Here

Learning from others is a great way for the neuromuscular community to obtain practical, every-day information. This FSHD Family Panel will be comprised of individuals living with FSHD and they will be answering questions from the audience live. Topics covered will include care, research, mental health, wellbeing, life hacks and more. This will be a live, moderated discussion.

Family Panel Moderator
Christine Tardiff, MSW, LICSW, MAPM
Clinical Social Worker, Boston Children's Hospital

Have questions that you would like the panel to address. Please email them to mdaengage@mdausa.org with the subject line of Family Panel question.

Not available to join live on June 8th? This event will be recorded for on-demand viewing.

MDA Thanks our sponsors:

  • Avidity Biosciences
  • Fulcrum Therapeutics

If you have questions about this webinar or other MDA Engage programs, please reach out to mdaengage@mdausa.org or you may contact our MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.

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