Stay informed. See MDA updates on COVID-19

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Spinal Muscular Atrophy (SMA) Symposium

November 13, 2021MDA Engage Logo
Event Time: 10:00am - 5:45pm Eastern Time
On-Demand event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Register here

Agenda

  • The morning will focus on pediatric care, early afternoon will focus on general SMA care and late afternoon will focus on adult care
  • Pediatric Respiratory Management in SMA (10:00am ET)
    • Dr. Hank Mayer, DO, Pulmonologist and Director, Pulmonary Function Laboratory, Children's Hospital of Philadelphia
  • Crucial Care Management: Nutrition and Physical Therapy (10:55 am ET)
    • Stacey Tarrant, RD, LDN, Boston Children’s Hospital
    • Natalie Reasch, DPT, Neuromuscular Physical Therapist, Nationwide Children’s Hospital
  • Orthopedic Challenges with SMA (12:00pm ET)
    • Dr. Jason Howard, Pediatric Orthopedic Surgeon, Nemours/Alfred I. duPont Hospital for Children
  • Mission Moment (12:45pm ET)
    • Nicole Petrouski, MDA
  • Current Research and Clinical Trials (1:00pm ET)
    • Dr. Kathrin Meyer, PhD, Assistant Professor, Molecular, Cellular and Developmental Biology, The Ohio State University
  • SMA Drug Development Roundtable (1:55pm ET)
  • Genetics surrounding Spinal Muscular Atrophy (2:45pm ET)
    • Jennifer Roggenbuck, CGC, Assistant Professor, The Ohio State University
  • Gain Independence in Activities of Daily Living (3:20pm ET)
    • Julie Muccini, MS, OTR/L, Stanford Neuroscience Health Center
    • Jacqueline Montes, PT, EdD, NCS, Columbia University
    • Sarah Stranberg, MA, CCC-SLP, Stanford Health Care
  • Pain Management in Spinal Muscular Atrophy (4:30pm ET)
    • Dr. Scott Barbuto, Assistant Professor of Rehabilitation and Regenerative Medicine, Columbia University
  • Why Multidisciplinary Care is Important as you age (5:10pm ET)
    • Dr. Bakri Elsheikh, Associate Professor, Department of Neurology, The Ohio State University

MDA Thanks our sponsors:

  • Biogen
  • Genentech