MDA Engage: Limb girdle muscular dystrophy (LGMD) Symposium
Saturday, June 4, 2022
Time: 11:00 -4:30pm EST
Live, Virtual Event
There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.
Register Here
Agenda
- MDA Mission Spotlight
- MDA Advocacy Update
- Research and Clinical Trials presented by Nick Johnson, MD, MSCI, FAAN, from Virginia Commonwealth University
- Nutrition presented by Mary Jane Voss, RDN, LDN, from M Health Fairview University of Minnesota
- Genetic Testing presented by Katelyn Payne RN, LCGC, from Indiana University Health Neuroscience Center
- Adaptive Equipment and Technology presented by Amber Ward, MS, OTR/L, BCPR, ATP/SMS, FAOTA, from Atrium Health
Check back periodically for updates to the agenda.