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MDA Engage: Duchenne Muscular Dystrophy Symposium

August 14, 2021MDA Engage Logo
Time: 11:00a.m. - 5:30p.m. Eastern Time
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Register here

Agenda

  • MDA Mission Presentation (11:00am ET)
    • Nicole Petrouski, Muscular Dystrophy Association
  • Potential Biomarkers and New Therapies for DMD (11:15am ET)
    • Dr. Craig McDonald, Professor and Chair, Department of Physical Medicine & Rehabilitation, Director, Neuromuscular Disease Clinics, UC Davis Health
  • Matters of the Heart in DMD (12:20pm ET)
    • Dr. Meaghan Doherty, Assistant Professor, Pediatrics, Division of Pediatric Cardiology, University of Massachusetts Medical School
  • Psychosocial Care with Duchenne Muscular Dystrophy (1:15pm ET)
    • Molly Colvin, PhD ABPP, Developmental Neuropsychologist, Director of the Learning and Emotional Assessment Program (LEAP) at Massachusetts General Hospital, and Assistant Professor of Psychology at Harvard Medical School.
  • Respiratory Strategies for DMD (1:50pm ET)
    • Dr. Richard Shell, Professor of Pediatrics and Section Chief of Department of Pulmonary Medicine and Nationwide Children's Hospital and The Ohio State University College of Medicine
  • How DMD Can Effect the GI System (2:50pm ET)
    • Dr. David Brumbaugh, MSCS FAAP, Associate Professor of Pediatrics Section of Pediatric Gastroenterology, Hepatology, and Nutrition, University of Colorado School of Medicine
  • Preserving Range of Motion: PT’s Role in Treatment (3:35pm ET)
    • Sarah Lehman, PT, DPT, Duke Health
  • Genetics and Duchenne Muscular Dystrophy (4:20pm ET)
    • Mackenzie Blaile, MS, CGC, Children’s Colorado
  • DMD Drug Development Roundtable (5:00pm ET)

 

MDA Thanks our sponsors:

  • Avidity Biosciences
  • PTC Therapeutics
  • Sarepta
  • Solid Biosciences
  • BioMarin.

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)