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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

2021 MDA Engage: PT, Exercise and Pompe Disease

Wednesday, July 28, 2021MDA Engage Logo
Event Time: 4:00 - 5:00pm EST
Live, Virtual Event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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Pompe disease is a genetic disorder characterized by progressive weakness and degeneration of skeletal muscles that control movement.  This MDA webinar will share how physical therapy can impact individuals living with Pompe disease.  The webinar will also highlight at home activities such as exercises and stretches, while also exploring at home modifications.   The featured presenters of this webinar are physical therapists Scarlett Morris and Mary Crouch Young from the University of Kansas Medical Center.

Scarlett Morris
Scarlett Morris

Mary Crouch Young
Mary Crouch Young

Live questions will be taken during the webinar. Not available to join live on July 28. This webinar will be recorded for on-demand viewing.

If you have questions about this webinar or other MDA Engage programs, please reach out to mdaengage@mdausa.org or you may contact our MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.

MDA Thanks our sponsors:

  • Amicus
  • AskBio
  • Astellas Gene Therapies
  • Sanofi Genzyme