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We provide programs and services that transform the lives of people affected by neuromuscular disease.

2021 MDA Engage: Diagnostic Odyssey of Pompe Disease

Recorded: June 7, 2021MDA Engage Logo
On-Demand Event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Watch recorded webinar

This webinar will help those individuals who are currently on the diagnostic odyssey and have heard Pompe Disease as a potential diagnosis. The webinar will share common tests use to diagnosis Pompe, explain which professionals are best to support someone through this journey and provide resources for where to go for support going through the journey of receiving a diagnosis. The featured presenter of this webinar is Dr. Jennifer Cohen, from Duke University.

Jennifer Cohen
Jennifer Cohen

MDA Thanks our sponsors:

  • Amicus
  • Sanofi Genzyme

If you have questions about this webinar or other MDA Engage programs, please reach out to mdaengage@mdausa.org or you may contact our MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or ResourceCenter@mdausa.org.