Innovations in Care

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2020 MDA Engage: Clinical Trial Series

On-Demand webinars

As part of the Muscular Dystrophy Association’s, (MDA), commitment to transforming the lives of individuals living with neuromuscular disease, we are dedicated to ensuring you have the information available on what clinical trials are and why they are important. We also want to ensure there is ongoing awareness of clinical trials for diagnosis under MDA’s umbrella. MDA has created the MDA Engage Clinical Trial webinar series and corresponding educational pieces. Topics include: what is a clinical trial, the drug development process from lab to FDA approval, roles and responsibilities, and how to find and choose the right clinical trial for you. Perspectives of a clinical trial from both a physician and a family are shared in this series.

Webinar: Clinical Trials: Research and Participation
Speakers: Dr. Kathryn Wagner (Kennedy Krieger Institute), Dr. Genila Bibat (Kennedy Kreiger Institute), Lilleen Waters (Patient Advocate)

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Webinar: Clinical Trials-from Design to FDA Approval
Speakers: Dr. Jerry Mendell (Nationwide Children’s Hospital), Sharon Hesterlee (MDA)
Sponsored by: Genentech and Mitsubishi Tanabe Pharma America

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Webinar: Clinical Trials and the ALS Community
Speakers: Dr. Sabrina Paganoni (Mass. General Hospital), Judi Carey RN (Mass. General Hospital), Paul Melmeyer (MDA), Bruce Rosenblum (ALS Advocate)
Sponsored by: Mitsubishi Tanabe Pharma America, Biogen

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Education Materials:

Education materials in Spanish coming soon!

Thank you to our Education Materials supporters: Genentech, Mitsubishi Tanabe Pharma America, PTC Therapeutics, Permobile Foundation

If you have questions after you watch this on-demand webinar, please reach out to or you may contact our MDA Resource Center at 1-833-ASK-MDA1 (275-6321) or