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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Transitions Care from Pediatric to Adult

April 10, 2021MDA Engage Logo
Time: 11:00am - 4:30pm ET
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Register here

Agenda

  • MDA Mission Presentation (11:00am ET)
    • Nicole Petrouski, Muscular Dystrophy Association
  • Taking Responsibility For Your Medical Care (11:15am ET)
    • Dr. Sophia Jan, Division Chief, Division of General Pediatrics, Medical Director, Health Homes Serving Children of Northwell Health
  • Respiratory Implications As You Get Older with Neuromuscular Disease (12:15pm ET)
    • Dr. Robert Heinle, Pediatric Pulmonologist, Nemours Children’s Health
  • The Fundamentals For a Successful Path to Independence (1:15pm ET)
    • Anna Goldberger, LCSW and Michelle Erford, LCSW, Ann and Robert H. Lurie Children’s Hospital of Chicago
  • Resources for Transitioning you Care (2:00pm ET)
    • Daniel Beck, The National Alliance to Advance Adolescent Health
  • Becoming Your Own Advocate (3:00pm ET)
    • Mark Fisher, Muscular Dystrophy Association