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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Pediatric Neuromuscular Disease Care

October 23, 2021MDA Engage Logo
11:00am - 4:00pm ET
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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Agenda

  • Welcome, Kristen Brunk (11:00am - 11:10am)
  • New Research and Clinical Trials, Dr. Matthew Harmelink (11:10am - 12:00pm)
  • Taking care of the Heart with Neuromuscular Disease, Dr. JJ Parent (12:10pm - 12:40pm)
  • Mission Moment, Kristen Brunk (12:40pm - 12:55pm)
  • The Importance of Nutrition in Children Neuromuscular Disease, Kelly Bell, RD (1:00pm - 1:40pm)
  • Everyday Tips for Exercise, Adaptive Clothing, and Self Care, Kim Anderson, OT &¬†Jennifer Jones, PT (1:45pm - 2:50pm)
  • Respiratory implications in children, Dr. Michelle Caraballo (3:00pm - 3:50pm)
  • Closing Remarks, Kristen Brunk (4:00pm)

Thank you to our supporter:

Amicus