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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage Community Education Seminar: Pediatric Care for Neuromuscular Disease

February 20, 2021MDA Engage Logo
Time: 11:00am - 4:30pm Eastern Time
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

Watch Recorded Seminar

Agenda

  • MDA Mission Presentation (11:00am ET)
    • Nicole Petrouski
  • The Importance of Multidisciplinary Care for Your Child (11:15am ET)
    • Dr. Katherine Mathews, Professor of Pediatrics – General Neurology, Professor of Neurology, University of Iowa Health Care
  • The Role of Research in Pediatric Care: Current and On the Horizon (Noon ET)
    • Dr. Partha Ghosh, Assistant Professor of Neurology, Boston Children’s Hospital
  • Key Management Considerations for Pulmonary Care and Neuromusuclar Disease (1:00 ET)
    • Dr. Oren Kupfer, Associate Professor, Pediatrics and Sleep Medicine, University of Colorado School of Medicine, Children’s Hospital Colorado
  • The Benefits of Good Nutrition and Neuromuscular Disease (1:45 pm ET)
    • Laura Watne, MS, RD, Children’s Hospital Colorado
  • Recently Diagnosed with a Neuromuscular Disease? What’s Next? (2:30pm ET)
    • Dr. Megan Waldrop, Pediatric Neurologist, Nationwide Children’s Hospital
  • The Influence of Genetics (3:15pm ET)
    • Carly Siskind, MS, LCGC, Stanford Hospital
  • The Role of the Sibling When One has a Neuromuscular Disease (3:45pm ET)
    • Zachary Rossetti, Ph.D., Associate Professor of Special Education, Boston University Wheelock College of Education & Human Development

For questions reach out to: mdaengage@mdausa.org | 1-833-ASK-MDA1 (1-833-275-6321)