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Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

MDA Engage: Caregiver Seminar

September 25, 2021MDA Engage Logo
11:00am - 3:30pm ET
Virtual, online event

There is no cost to members of the MDA community or healthcare providers to attend the event, however registration is required. Members of the biopharma industry interested in sponsoring or attending should contact the MDA Healthcare Partnerships team at MDAPartners@mdausa.org. For all other questions, please reach out to mdaengage@mdausa.org.

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  • Welcome and Mission Moment (11:00am ET)
    • Nicole Petrouski, Muscular Dystrophy Association
  • Preparing a Care Plan: What a Caregiver Needs to Know (11:10am)
    • Dr. Lora Council, Senior Medical Director, Cambridge Health Alliance
    • Aimee Valeras, PhD, LICSW, Concord Hospital Family Health Center
  • Communication Techniques and Strategies for the Caregiver and Patient (12:00pm ET)
    • Dr. Mary Beth Happ, PhD, RN, FGSA, FAAN, Associate Dean for Research and Innovation, Nursing Distinguished Professor of Critical Care Research, The Ohio State University
  • Balancing Life as a Caregiver and How to Take Care of Yourself (1:00pm ET)
    • Lauren Presutti, MEd, EdS, LLMSW, River Oaks Psychology
  • Caregiver Panel Discussion (2:00pm ET)
    • Moderator: Lauren Presutti, MEd, EdS, LLMSW, River Oaks Psychology 
  • Financial Planning for Caregivers (2:45pm ET)
    • Jacqueline Baldwin, CLTC, B & L Financial Architects