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Press Releases

Congress Passes Bill to Increase National Institutes of Health Funding by $2 Billion

Submitted by studiog on Fri, 02/12/2016 - 12:16

Background: Ensuring increased funding for the National Institutes of Health (NIH) has been one of MDA’s top 2015 policy priorities. Through targeted efforts in Washington, DC and with strong support from advocates across the country, MDA, along with many other organizations, has urged Congress to boost funding for NIH. Today, Congress passed the FY 2016 spending bill with a $2 billion increase for NIH— representing the largest increase in NIH funding in more than a decade.
Five Questions with DMD Researcher James Ervasti

Submitted by studiog on Fri, 02/12/2016 - 12:24

James Ervasti, professor in the department of biochemistry, molecular biology & biophysics at the University of Minnesota in Minneapolis, is working to develop methods of identifying non-invasive biomarkers that can be measured in all patients across the entire spectrum of Duchenne muscular dystrophy (DMD) disease severity.

Please describe your current research in DMD.
Supreme Court Upholds Nationwide Health Care Law Subsidies in ACA Ruling

Submitted by studiog on Fri, 02/12/2016 - 12:33

Background: On June 25^th, 2015 the United States Supreme Court ruled to uphold nationwide health care law subsidies. Under the Affordable Care Act (ACA), states were tasked with setting up their own exchanges where individuals could purchase healthcare. Some states created exchanges, while others opted to use exchanges run by the federal government. The question at issue in the Supreme Court case King v.
MDA Mourns the Loss of Former National Goodwill Ambassador Mike Neufeldt

Submitted by studiog on Fri, 02/12/2016 - 14:27

Today the Muscular Dystrophy Association (MDA) mourns the loss of Mike Neufeldt, 37, of New Berlin, Wis. — a voluntary leader, ambassador and beloved member of the MDA family who had a tremendous positive impact on MDA’s mission to save and improve the lives of those fighting neuromuscular diseases, including the Emery-Dreifuss muscular dystrophy Neufeldt battled since childhood.
Catalyst Pharmaceuticals Conducting Trial to Test Amifampridine Phosphate (FIRDAPSE®) in Children with Congenital Myasthenic Syndromes

Submitted by studiog on Fri, 02/12/2016 - 12:51

Statement from Catalyst: Amifampridine phosphate in CMS Clinical Trial

Researchers are looking for children, ages 2 to 17 years, with congenital myasthenic syndrome (CMS) to participate in a new phase 3 study being conducted by Catalyst Pharmaceuticals to test the experimental drug amifampridine phosphate.
MDA Team Momentum Fights Back Against Neuromuscular Disease at the 2015 Marine Corps Marathon

Submitted by studiog on Fri, 02/12/2016 - 14:32

WASHINGTON, D.C., Oct. 20, 2015 — The Muscular Dystrophy Association’s nationwide endurance program MDA Team Momentum will make its second appearance at the 2015 Marine Corps Marathon on Oct. 25 to help support MDA’s mission to save and improve the lives of kids and adults fighting muscular dystrophy, ALS and related life-threatening diseases that severely limit muscle strength and mobility.

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Press Releases

Congress Passes Bill to Increase National Institutes of Health Funding by $2 Billion

Five Questions with DMD Researcher James Ervasti

Supreme Court Upholds Nationwide Health Care Law Subsidies in ACA Ruling

MDA Mourns the Loss of Former National Goodwill Ambassador Mike Neufeldt

Catalyst Pharmaceuticals Conducting Trial to Test Amifampridine Phosphate (FIRDAPSE®) in Children with Congenital Myasthenic Syndromes

MDA Team Momentum Fights Back Against Neuromuscular Disease at the 2015 Marine Corps Marathon

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About Us

Press Releases

Congress Passes Bill to Increase National Institutes of Health Funding by $2 Billion

Five Questions with DMD Researcher James Ervasti

Supreme Court Upholds Nationwide Health Care Law Subsidies in ACA Ruling

MDA Mourns the Loss of Former National Goodwill Ambassador Mike Neufeldt

Catalyst Pharmaceuticals Conducting Trial to Test Amifampridine Phosphate (FIRDAPSE®) in Children with Congenital Myasthenic Syndromes

MDA Team Momentum Fights Back Against Neuromuscular Disease at the 2015 Marine Corps Marathon

Find MDA in your Community

Find MDA
in your Community