About MDA

Fighting every day to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger

Press Releases

  • Supreme Court Upholds Nationwide Health Care Law Subsidies in ACA Ruling

    Background: On June 25th, 2015 the United States Supreme Court ruled to uphold nationwide health care law subsidies. Under the Affordable Care Act (ACA), states were tasked with setting up their own exchanges where individuals could purchase healthcare. Some states created exchanges, while others opted to use exchanges run by the federal government. The question at issue in the Supreme Court case King v.

  • MDA Mourns the Loss of Former National Goodwill Ambassador Mike Neufeldt

    Today the Muscular Dystrophy Association (MDA) mourns the loss of Mike Neufeldt, 37, of New Berlin, Wis. — a voluntary leader, ambassador and beloved member of the MDA family who had a tremendous positive impact on MDA’s mission to save and improve the lives of those fighting neuromuscular diseases, including the Emery-Dreifuss muscular dystrophy Neufeldt battled since childhood.

  • Catalyst Pharmaceuticals Conducting Trial to Test Amifampridine Phosphate (FIRDAPSE®) in Children with Congenital Myasthenic Syndromes

    Statement from Catalyst: Amifampridine phosphate in CMS Clinical Trial

    Researchers are looking for children, ages 2 to 17 years, with congenital myasthenic syndrome (CMS) to participate in a new phase 3 study being conducted by Catalyst Pharmaceuticals to test the experimental drug amifampridine phosphate.

  • MDA Team Momentum Fights Back Against Neuromuscular Disease at the 2015 Marine Corps Marathon

    WASHINGTON, D.C., Oct. 20, 2015 — The Muscular Dystrophy Association’s nationwide endurance program MDA Team Momentum will make its second appearance at the 2015 Marine Corps Marathon on Oct. 25 to help support MDA’s mission to save and improve the lives of kids and adults fighting muscular dystrophy, ALS and related life-threatening diseases that severely limit muscle strength and mobility.

  • Enrollment in Diaphragm Pacing Systems for People with ALS Halted

    In September, the Data Safety and Monitoring Board (DSMB), constituted to oversee the Diaphragm Pacing System in Participants with Amyotrophic Lateral Sclerosis (DPS in ALS) study, being conducted in the United States, issued a recommendation that new enrollment be halted. At the same time, the DSMB recommended that patients already randomized to the diaphragm pacing arm continue to be actively stimulated and followed according to the protocol. 

  • MDA Awards $10 million in new Research Grants

    Record-breaking interest highlights progress, desire to find breakthroughs across diseases

     

    CHICAGO, August 25, 2015 – Powered by its big-picture perspective to accelerate treatments and cures across the broad spectrum of neuromuscular diseases, MDA today announced the award of $10 million in new research grants to the world’s brightest scientists conducting leading-edge discovery for muscular dystrophy, ALS and related muscle-debilitating diseases.