About Us

We're here to transform the lives of people affected by neuromuscular disease.

Press Releases

  • MDA Awards $2.6 Million in New Research Grants

    Investment funds critical infrastructure, feeds a rapidly expanding therapy development pipeline and encourages researchers and other stakeholders to commit to the neuromuscular field

  • Target ALS Launches Biomarker Study with Academic, Industry, and Philanthropic Partners

    Unprecedented Effort Aims to Accelerate Testing of New ALS Therapies

    NEW YORK CITY, N.Y. ( April 19, 2018 ) — Target ALS today announced the launch of a new study that connects the CReATe Consortium (Clinical Research in ALS and Related Disorders for Therapeutic Development), the Muscular Dystrophy Association and 10 pharmaceutical companies to validate the most promising ALS biomarker candidates, and immediately make all results broadly available to the worldwide ALS research community.

  • MDA Names Michael J. Kennedy as Chief Financial Officer

    CHICAGO, March 30, 2018 — After a comprehensive nationwide search, the Muscular Dystrophy Association has announced the appointment of Michael Kennedy as Executive Vice President and Chief Financial Officer, effective March 19, 2018. Kennedy succeeds Julie Faber, who left MDA earlier this year.

  • Solid Biosciences Announces Clinical Hold On SGT-001 Phase I/II Clinical Trial For Duchenne Muscular Dystrophy

    Cambridge, MA, March 14, 2018 – Solid Biosciences Inc. (NASDAQ: SLDB) today announced it has received notification from the U.S. Food and Drug Administration (FDA) that IGNITE DMD, its Phase I/II clinical trial for SGT-001 microdystrophin gene transfer in Duchenne muscular dystrophy (DMD), has been placed on Clinical Hold.

  • MDA Collaborates with IQVIA to Expand Disease Registry into the New MOVR Data Hub

    Enhancements will streamline data capture and connect patients with opportunities to participate in new research and take advantage of emerging treatments

  • Harley-Davidson Honored for Research Contributions at 2018 MDA Clinical Conference

    Director of Government Affairs Ed Moreland presented with a symbolic white research coat to recognize Harley-Davidson’s support of the children and families MDA serves

    Who: Milwaukee-based Harley-Davidson, Inc., Director of Government Affairs Ed Moreland and the Muscular Dystrophy Association (MDA)